Advice

Hi new to the group..is there any way or anything I can do to help me live with fibromyalgia getting to the point now where walking is hard work due to being in pain only got told 2 wks ago that I had it. After loads and loads test getting me down now

[Hidden]

May I ask how old you are Hidden ? Have you got a rheumatologhist looking after you or a physiotherapist? I found hydrotherapy very helpful to build up some muscle power, its a lovely warm 32 degreee pool where a physio gives you a programme of excercise to do for the worst affected areas- for me it was legs..Ask about his posibility.

[Hidden in reply to Hidden]

I'm 35 .just got told I have it and he give me med which is not helping went back and he put me on 50mg amitriptyline and seen them both when was having tests .that's it

[Hidden in reply to Hidden]

amitrip are really anti depressants that have been found to help with sleep loss, I tried them 17 years ago but found I awoke with a pounding headache, I was told tot ake them with my eveing meal (as long as you are not going to drive after) and that they should kick in by bed time.. I really do think you need to daytime pain relief too, ask you g.p for something like co codamol as he can prescribe a better dose than you can buy.

[Hidden in reply to Hidden]

Thank you for the advice I'm going ring up today

[YASMINTINA FMA UK Volunteer]

healthunlocked.com/fibromya..., hi there and welcome, it does get to you as we have to find ways to adjust to Fibro 0n a daily basis even harder if you work full time on top, I would differently go back to doctor ,meds is very much trial and error for many members I read including myself after 3 or 4 attempts getting something that works. Is there any adjustments work can help you with ?? I’ve posted a link above if you would like to lock your posts it gives you more -privacy as not open to any other site engines on the internet and only our members can see, I hope reading peoples posts will help, experiences, little tips to try, like nurse Gladys has said hydrotherapy would be good to try if you have a hydro pool at your local hospital, or I’m sure there are some private places as well. If you have a bath Epsom salts is a good one to soak in for aches and pains, some try a tens machine as well and for me a couple of good old fashioned hot water bottles when you are resting at night. Take care .

[Babs1620]

ont let it get you down. I have had it over 40 years, 25 or more without a name so that I thought I was going mad. My legs ache if I have to walk more than 10 yards but what I do is doing the necessary walking then rest the next day. You have to be able to say no to people without feeling as if you have let them down, I know that is not easy but it comes with time. Take care.

[Ihatetesco]

Hi. . I have e had Fibromyalgia for about 4 years now, brought on by my pregnancy with twins. The first two years I could hardly walk..it can get better ! You will scream at me for saying this but you have to walk if you have pain in your legs. Just a few meters down the road and back and increase everyday slowly. My legs only improved when I had to take my children to pre school and I had no choice but to do it. I actually cried at the thought of doing it and had a panic attack. I thought I was going to die on a few occasions but after a year and a half I can do it more easily and in much less pain. I also do stretching,.Everyone is different when it comes to medication but I take gabapetine just at night and have found since taking Prozac my head feels better In the morning. CBD oil was a huge game changer for me..I also take tumeric and frankinsense and bath in Epsom salts, which are all anti inflammatory. Hope this helps

[harmony2]

Some things may help:

-healthy self talk to get out of bed. I use a Bible verse; something with truth/life that builds strength vs. tears down.

-Reading something helpful to “get my head on straight” every morning. Prayer.

-Do physio therapy exercises every day or I will lose more ground. (Ask for brief course of physio if don’t have.)

-totally agree with ihatetesco: must walk. Helps mind and body. even when only 5 minutes was HARD. Now, with breaks, i can walk for a mile most days. Took so long but worth it.

-hydration - water. I mostly drink hot. or fruit tea when cannot face plain water.

- hot bath.

- rest even 10 minutes but frequently, especially when feeling weak, nauseated.

- I have to nap daily. Still learning to accept this.

- have a chair in kitchen to use eg when chopping, i put cutting board on a lap tray.

- grocery delivery! Eg for a whole year is £24-36. Check your fav store. We get mid week delivery 50 weeks a year for £24!

- simple meals. Plan ahead so don’t end up eating poor quality food.

Do “planned overs”, eg, I buy 1kg of chicken breast; cook it all on a grill pan for 25 minutes at 160fan. Then freeze in zipper bags by 2’s. During the week I thaw out the chicken (put in fridge the night before I needed). Then just steam vegetables, make rice/pasta, different sauce/gravy each night. I use frozen veg as lots of chopping is done but fresh is nicer, I think.

-find friends who “get it”. They are critical to not feel isolated and to feel understood.

-say yes when someone asks to visit, help (I’m still adjusting to this but learning humility

-remember to “budget” energy. Social, emotional, mental and physical tasks all use up limited energy. (Look at “spoon theory” concept—a good way to conceive of new limits.)

-catch yourself comparing to what you used to be able to do, or to what others can do. Cry when needed (that could be its own bullet point). B e g i n to stop comparing. It’s Not helpful. Normal, but not helpful.

-grieve ( ongoing process ).