Fibromyalgia is a long-term condition characterised widespread pain and profound
fatigue. It's not clear exactly how many people are affected by fibromyalgia, although
research has suggested it could be a relatively common condition affecting around 1
in 20 people to some degree. Other symptoms of fibromyalgia often include
unrefreshing sleep, headaches, an irritable bowel, cognitive disturbances, dizziness
and sensitivity to environmental factors.
The aim of Fibromyalgia Awareness Week is to raise awareness of Fibromyalgia, and
the impact it has on those living with fibromyalgia, and their friends and family.
Given
that Fibromyalgia is an invisible disease, it is so important that we raise
awareness of Fibromyalgia, in order to broaden perceptions, knowledge and
understanding of this condition. During the week, we will be sharing different
perspectives from people living with fibromyalgia; family members; volunteers,
patient organisation representatives, and healthcare professionals, in order to raise
awareness and challenge some of the misconceptions people have about
fibromyalgia.
How can I get involved?
• Get involved on social media:
o Add a Twibbon to your Facebook and Twitter profile pictures:
twibbon.com/support/fight-f...
o Join our Thunderclap on Facebook, Twitter and Tumblr:
- also see the Promotional Image top right of this HU community, if you click on the image it will take you directly to the Thunderclap campaign url.
o Spread the word by liking, sharing and retweeting our posts and videos
on Facebook (@ukfibro) and Twitter (@fmauk)
o Take a selfie and post it on social media using the hashtag #FightFibro.
We’ll be sharing them throughout the week!
• Download and request copies of our posters and leaflets about fibromyalgia:
• Take a look at our information booklets, and share them with people who
may find them useful: fmauk.org/booklets
• Send a medical pack to your general practitioner (GP) or other healthcare
professionals if they need some further information about fibromyalgia:
• Fundraise for Fibromyalgia Action UK. Please visit:
fmauk.org/fundraising for more information.
Thank you for supporting Fibromyalgia Action UK.
Together, we are fighting for freedom from fibromyalgia.
Please Note: This post may be shared on Twitter and/or Facebook as an information post within the community so replying option is switched off.
Awareness of fibromyalgia 
Fibromyalgia Awareness Week 4 - 11 September 2016.
#fibroawarenessday - If FIBRO is Invisible - What does that make me?
