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Fibromyalgia Action UK

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I'm new 😬

debster profile image
debster
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Was diagnosed with fibro almost 2 years now,also have lots of other conditions going on such as IBS, spondylitis etc..... and most days are a struggle so any advice is welcome especially on skin/ autoimmune issues as recently was diagnosed with eczema and sporisis thanx

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debster profile image
debster
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BlueMermaid3 profile image
BlueMermaid3

Hello debster

Welcome to the forum :)

I am sorry that you have Fibromyalgia plus many other symptoms.

I can totally empathise with that!

If you take a look at our mother site you'll find lots of info about Fibro on there fmauk.org

I am very lucky (if that's the right word!) that I don't have any skin conditions, but I am sure someone will soon come along who can advise you.

I don't know if you are aware that stress can very much heighten Fibro symptoms, especially IBS.

Once again a very warm welcome and I look forward to seeing you around the forum :)

Lu xx

debster profile image
debster in reply to BlueMermaid3

Thank you il check it out

rosewine profile image
rosewine

I would just like to say welcome. Apart from quite itchy skin I have been lucky with not having skin issues. I can commiserate though with your other conditions as I also have them. I am sure others will be along to advise. Look forward to your future posts.x

Dinkie profile image
Dinkie

Hi Debster and welcome to the club nobody wants to be in. I have skin issues particularly rosecea and the dermatologist gave me a cream for it which helps to a degree however I find watching diet is quite helpful. No processed foods or refined sugars and also reducing the amount of gluten although not totally gluten free. Also use epsom salts in baths but not when skin has open wounds. I also use hypnotherapist, chiropractor and gentle exercise to try and keep me as healthy as I can be. It's really difficult to advise anything really where fibro is concerned as it is so different for all of us. Positive mental attitude works too - I try but sometimes even with the best will in the world PMA escapes me! Use the boards here - we are generally a helpful, happy bunch and it's fine to post when things are getting you down, if you need to rant, or if you just want to share something because it makes you happy or it may help someone else. I am sure someone else will be along soon and post something that may help you. Take care

debster profile image
debster in reply to Dinkie

Thank you, I'm waiting on a referral to a dermatologist so will keep you updated.

Dinkie profile image
Dinkie in reply to debster

Good luck - hope yours is more helpful than mine. Just got given a prescription and discharged. She didn't believe fibro caused any rashes/photosensitivity :( I just manage with the prescription cream and very high factor sunscreen!

debster profile image
debster in reply to Dinkie

Noted, I have the creams that help but the burning itchy pain keeps coming back, mainly my feet and toes , just get so fed up with the consistency

Dinkie profile image
Dinkie in reply to debster

for the burning I use aloe vera gel as it seems to take the heat out. May work for you may not - that's the trouble with this awful illness. What works for one may not work for another. Think that's half the reason why the medics tend to wash their hands of us!

debster profile image
debster in reply to Dinkie

lol il try that , see how it goes thank you

Fallabella profile image
Fallabella

Hi Debster, welcome to our fabulous forum.

I only get really itchy so I'm afraid I can't answer very well. Forgive me if I've got this completely wrong but did you mean psoriasis? My sister suffers from this and has meds for it but she tells me that sunlight clears it up the best. Hers is all down her back so she tends to wait for a summer holiday to treat it with the sun.

Hope this helps even if only a little.

Lovely to meet you, big hugs xxx

debster profile image
debster in reply to Fallabella

Yes I found that out last month when I was in the canaries.... saving pennies for my next trip although I can't work with all my conditions and was turned down for PIP so as you can imagine it's hard, poor hubby takes the strain :( and the stress is part and parcel of that dilemma.

Fallabella profile image
Fallabella in reply to debster

Oh no, did you try to appeal the PIP decision. I've heard that many people who appeal finally get the award they deserve.

Sending hugs xxx

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