Confused 😩: Hi all, I was diagnosed... - Fibromyalgia Acti...

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Confused 😩

Nikkijs profile image
Nikkijs
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Hi all, I was diagnosed with ME/CFS last year but my chiropractor, who's known me for nearly 10 years, thinks my symptoms are more like fybro myalgia.

I know a lot of the symptoms are the same but I don't know if I should speak to my doctor again or not bother. It's just that I'm in a lot of pain every day and am struggling to cope.

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Nikkijs
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Janet28 profile image
Janet28

Hi Nikkijs welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

I would find out as much information as you can and write a note of all your symptoms, i.e. where you have pain, how you feel daily etc. Then go armed with this to your gp. Fibro does take quite a long time to diagnose though, although your gp may give you some medication to see if it helps the pain, they will then take blood tests, then if nothing is found & your still in pain, the next thing is to be refered to a rheumatologist.

Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.

fmauk.org

Peace, luv n light

Jan xx

Creativeness1 profile image
Creativeness1

Hello and welcome as janet28 has sent you all the very valuable information just thought i would say hi :)

bluebell99 profile image
bluebell99

Hello and welcome to our friendly fibro forum where you can get advice, help, support and understanding.

Fibro can accompany many other conditions and it could well be that you have ME/CFS and fibro. None of those are mutually exclusive.

I would follow Jan's good advice about information and a pain diary to take back to your doctor.

You should at the very least be on some sort of pain medication.

Have a look at the NHS site about fibro too.

nhs.uk/Conditions/Fibromyal...

Hope to see you around the forum.

Kay.

Janethaywood profile image
Janethaywood

Hi Nikkijs hope you find this site as interesting and informative as I do 😊 such a lovely group ❀️

Dinkie profile image
Dinkie

Welcome. Could you ask your chiropractor to write a letter to the GP. I know many medics frown upon patients "self diagnosing" as they see it. May be worth a go. GPs are more likely to listen to other "professionals" than us mere mortals who are suffering!

TheAuthor profile image
TheAuthor

Hi Nikkijs

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I agree with Dinkie and ask your Chiropractor for a letter explaining their reasons for saying Fibro for your doctor. It may also help to keep a small pain diary of how you are feeling on a day-to-day / hour-to-hour basis?

I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

A rheumatologist diagnoses Fibro....who were you diagnosed by...as I didn't think a Rheumy could diagnose ME for example x

Nikkijs profile image
Nikkijs in reply to

Hi Lins345,

I was referred by my gp to a specialist who knows more about ME and he gave me the diagnosis and recommended CBT.

😊

Hello Nikkijs, are you on any prescribed meds for the pain?? If not your g.p should be able to offer you something not available in pharmacy.

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