I'm really desperate. I can't sleep for more than 3hrs. Has anyone found anything that really works to knock you out for the night but without the hangover in the morning?
Things that haven't worked:
Amitriptyline
Zopiclone
Zolpaderm
Promethazine
Diazepam
Temazepam
Clonazepam
Gabapentin
Pregabalin
Melatonin
There may be others I've forgotten.
Thanks you.
Hi there
I have been a complete insomniac for 30 years, but randomly enough I occasionally take Nytol which works for me.
I have checked with my pharmacist whether it is ok to take with all my meds and he confirmed that it was ok.
I take the one in the light blue box.
Lu xx
Hiya so sorry your going through this. It must be dreadful. I cannot recommend anything for you angel I'm afraid. Amitriptyline works for me. Hope you get some relief soon x
Could insomnia trigger fibromyalgia? I have seen so many people say they suffer from it, and I do too. Mine began as a newborn baby, my mum has always needed her sleep and often it so easy to drop off, and she was disappointed that her newborn hardly ever slept. Even when I do fall asleep I wake so many times in the night. Last night I actually slept for five hours solid, which is new for me, but then I was drugged with 150mg of lyrica, 60mg of duloxetine and 2mg of diazepam. I haven't tried nytol so cannot comment about that, except to say that the adverts seem to suggest it works.
My heart goes out to you, as it is a never ending circle, if you do not sleep properly then your FMA gets worse. I have been on Nortriptyline for nearly five years, but realised that it was not doing me any good and my sleeping was getting worse if that is possible. so I have taken myself off, still have terrible pain, but I am using Lavender capsules (Kalms 80mg) and I am sleeping better, you will have to check if you can take them with other medication, best wishes.
Unfortunately, you qualify for the Night Owls forum club as there are quite a few of us wide awake in the small hours. I have always been a light sleeper from as far back as I could remember only getting a few hours a night. Since fibro struck it has been a nightmare well I say that tinfuein cheek as I literally don't sleep long enough in one stretching have time for a proper nightmare.
I have tried all the herbs and all the sleep tips but unfortunately none has made any difference. I use Silicone about once a week and it gives me about four different!anointed hours but I am now finding that I have a headache the next day that resembles what I would think was a hangover headache.
I think we might be falling asleep sometimes and then as we relax we turn in bed and it hurts and we do t know what has forced us awake. Other times we are in so much pain getting a comfy position is impossible.
You have my heart felt sympathy as I wouldn't wish it on my worse enemy. If you do find a cure let us know as many of us would be very grateful.x
Hello Trazzlepops,
You have an impressive list of medicines there! I have no medical training to suggest which combination works best ? We all respond so individually to medication any way? None have found a magic cure to insomnia .
I would like to suggest a multi pronged approach? It might be helpful to ask for a review of your current tablets as many tablets list sleeplessness as a common side affect? try writing down intrusive worries before you go to bed: to get them out of your system ? so they are out , rather than inside stressing you? And I know this will sound very mundane and insensitive: but try and be as physically active as you are able during the day because a physically tired body can sleep more deeply?
I was also wondering if relaxation techniques might help with sleep as fibromyalgia seems to be a problem of the central nervous system where the body is permanently stuck on high volume and relaxation may help to turn down the volume control? This is what I am hoping for myself. I am sorry if I sound "hippy" or know it all? We all hope to find away of coping with pain and physical limitations?
I have watched my son struggle with insomnia and anxiety for many years and he was given many different drug options over 10 plus years: many of which seem to be used for nerve pain and fibro too. Each having both benefit and unpleasant side effects. Life can become a cost benefit analysis as to which drug has the least unpleasant side affect. We , with fibro are all struggling to get deep refreshing sleep. And are doing our best just to get through the day .
I apologize if I have offended you? I am still coming to terms with my various autoimmune health issues and I have other health issues too for which I have had operations and drugs from childhood. I am now in my fifties and I am finding the prospect of taking the recommended drugs more than a little terrifying!
I wish you luck and hope you find something that brings peace and relief. xx
I think insomnia is a big factor with fibromyalgia. Unfortunately some members are like you and have tried everything in the medical chest to get a good nights sleep. I am taking amitriptyline at night and whilst it helps with the pain it is not enough to send me to sleep.
There is a thing called sleep hygiene which means no electronic things like the telly, phone or laptop, the room to be cool and well ventilated, no meals within 3-4 hours of bedtime, a bath, (not too hot) a warm milky drink, comfortable bedclothes, reading and any other distraction to stop you getting anxious.
After following all that, (except the bath, we have a shower) I am frequently still waiting for sleep, so my own bit of advice is give it an hour, get up and make a drink, not coffee, go to the loo and sit in the lounge with a blanket and put the telly on the news channels. These are often so boring that you will find yourself getting sleepier. Do not delay, go back to bed!
I have read that we have eight minutes to get to bed and asleep from the first yawn and feeling tired. It is a mistake to think you just need to watch the end of the programme or finish a bit of knitting. If your body says you are ready at ten o'clock at night, go for it Trazzlepops !
Hi Trazzlepops
I am so genuinely sorry to read this and I was wondering if you have considered a change in routine before bedtime as the medication isn't working? I knwo many insomniacs (I am one) try and change around their bedtime habits such as no phones, computers, TV etc an hour before bedtime. It may be worth a try for a few weeks?
I want to sincerely wish you all the best of luck, and please take care of yourself.
All my hopes and dreams for you
Ken
Banana tea is as good as anything i have ever tried. Bring approx 500ml of filtered water to the boil in a pan, chop thends off banana, do not remove skin, cut banana in 3 or 4 pieces, i put in 2 cloves because it helps my breathing but some say add cinnamon, simmer for 10 minutes, drain into cup and drink 1 hour before intended sleep time. I also eat the mushy banana including the skin, it tastes absolutely fine despite what you may think, i dismissed this advice for 6 months with a loud YUK until my GP told me to do it It worked for me absolutely perfectly after 2 or 3 nights, longer and deeper sleep and no hangover.
CANT SLEEP/WONT SLEEP...
Can anyone help with sleep advice and coming to terms with these conditions?
Med
