Know one hears me 😫

Hi I am new to this forum just being told I have fibromyalgia I don't know enough about it GP not very helpful 🙃 I was referred too rheumatologist he gave me the medication with no explanation so fed up with them all. Got taken off esa in June after medical assessment I hadn't been told I had this condition now on jsa adviser said to get PLP forms she said she'd get their OT to assess what I need to adjust if I get employed didn't get a face to face appointment just advice on websites to manage my Fibromyalgia and I need to tell my futer impolyer the sort of desk and adjustment I don't feel well enough for any of this know hears me 😫😫

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  • Hi Hel52

    Welcome to the forum :) You sound very concerned about a lot of things, so I will try to work my way through your post and try to help you.

    If you take a look at our website you'll find lots of information on Fibromyalgia fmauk.org

    If you let us know what medication you were given we can help you with that too. In general a Rheumatologist will start with Amitryptyline. Is that what you were prescribed with? If so it is a medication that will help you with your pain, low mood and sleep.

    It is a medication that can be increased to a large amount, so please don't worry if it doesn't help you straight away.

    Did the Job Adviser tell you to get PIP forms? If so, let me know and I can come back and give you more information on getting those forms. I wouldn't advise you to apply for the forms until you are fully ready to fill them in. You are given a deadline to have them back by, so it's probably best to find out more about them first.

    Unfortunately with Fibro it is very hard to get yourself heard as we can look well on the outside but be crippled by pain inside.

    I don't want to swamp you with information as you sound in quite a panic at the moment.

    PIP stands for Personal Independence Payments. This is a monthly award paid to help people stay independent. Not everyone is awarded PIP but it is definitely worth looking into at least.

    Is there anything at all that you'd like to ask me? You wont look back after today. You have just joined the friendliest nicest group of people you could ever hope to meet. Everyone is kind and compassionate because we know exactly how you feel.

    Wishing you less pain and more peace

    Lu x

    Administrator

  • all good advise from Bluemaid stay with us you will get a lot of support on this forum.

  • Lu is a mine of information :-) The only thing I will say is that Amitriptyline doesn't help everyone, if it helps you all the better.

    I will reiterate that you can ask anything, I doubt that there is anything that hasn't been asked before or that someone won't be able to answer :-O

    You have come to a good place, supportive as well as informative. You will find that sometimes there's fun to be had too when you feel like it :-)

  • Hi Lu,

    I am taking amitriptyline 20 mg at night also Gabapentine 3x300mg 3 times a day meloxicam 7.5 mg twice a day sertraline 100mg a day Solpadine 3 or 4 times a day get bad anxiety due work coach at the job centre I apply for 1 job every day it's all I can manage she said it's not enough. I sent her an e-mail spelling it out to her. I have personally independence payment forms I don't know what bits I need to fill its just like the medical assesment forms for ESA.

    Regards Hel52

  • Hi welcome. There is a benefits advisor for fmauk. Please check out web page abd give them a call soonest. There is also a solicitor that works closely for FMA. Brain Barr you can google that one if you need. Your GP and you may need to have a chat about your ability to work etc. Many people with fibro feel they are not heard nevermind understood. Here on the forum we are the opposite we do understand and someone has supportive advice for people who post all the time. Best Wishes.

  • Hi again :)

    I have given you a link that our Ken (Admin) has Pinned to the forum. It will give you details about benefits:

    healthunlocked.com/fibromya...

    I would also suggest that you get in touch with Janet our benefits adviser. I will pop back and give you the link for her as well:

    healthunlocked.com/fibromya...

    I would definitely advise you to get some professional help filling in your PIP form. If you'd like me to give you some more info on that, let me know.

    If you don't feel your meds are working, make an appointment to see a different GP and ask for a medication review.

    I think you need to tackle one thing at a time. That way you will feel more in control.

    If there is anything you'd like to ask me, or anyone else at all, please feel free to do so. We are all here to help and support you :)

    I will be back later and chat with you again to see how you are doing.

    Lu xx

  • Hi Hel52 just to say hi & welcome to the site, I'm sure you will love it like we all do. I see you have already been given lots of advise from admin etc. So that will probably keep you busy for a while.

    Peace, luv n life

    Jan x

  • Hi Hel52

    Welcome to the forum and it is wonderful to make your acquaintance.

    I am so genuinely sorry to read all of this, and I sincerely hope that you can find some resolution to these issues. It may be best to go back to your doctor and explain your situation and ask about sick notes so you can get back onto ESA? And also talk to them about you applying for PIP to ascertain if they will support your claim?

    I would read the advice that everyone has given you on contacting the FMA UK benefits adviser and about your medication. I want to sincerely wish you all the best of luck, and please take care of yourself.

    All my hopes and dreams for you

    Ken

  • Thank you for your advice it's been very helpful my GP wrote sick notes for esa a while back. I will take it one step at a time once again I am so thankful you everyone

    Have a great day. Xx

  • Good luck my friend x :)

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