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Newly diagnosed.

Artyann profile image
6 Replies

Hi to all

I am newly diagnosed after 2 years of pain that I just can't get rid of , sleepless nights , so drained all the time .

I joined in the hope that I can get some helpful tips from fellow sufferers who manage the pain well .

I am a very arty and crafty person and this condition is getting in the way of that quite a bit .

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Artyann profile image
Artyann
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6 Replies
Katherineanne profile image
Katherineanne

Hi Artyann, I'm sorry it took two years to get you diagnosed, but I'm glad you found this forum. I just joined last December, myself... and have had fibro for a little over 7 years diagnosed... but probably a little over 10 years in total... I spent, at least, 3 years suffering without a diagnosis. It might sound crazy, but when I finally got diagnosed I was happy. You might have likely felt the same way...to finally find the answer to why you are the way you are, something that had changed so much about your world and it felt as if next step was...

" okay, now where is the solution" right? Well I think you'll find on here that everybody has different things they use to tend to Fibro and related symptom management... from homeopathic methods to traditional medicine...any and everything, in between. I found that I do more reading than posting so far... And I don't know why that is, but I sure do feel connected to people just reading their post and if I feel the connection or have something to contribute, I do... In reading pistings and replies of other members to each... I have not read a post or a reply that has been offensive or not in the best interest of the person who wrote the post... Even if it was not always in agreement... where the person replying want to contribute but like they needed to tell the person something,as if they were part of their family... even if it wasn't a popular reply...but in the perdon postings best interest. You understand what I'm saying? I don't know if that made sense as it is written. But basically means that everybody comes across as very caring. Can't ask for more than that!!! :) I hope you to get some solutions, ideas and comfort physically and emotionally by talking with people here and reading posts. I definitely have... Amazes me how someone else's post can seem as if that person read my mind... But I gotta tell you...what I find more valuable, in my short time being in this forum, is that I am understood by strangers, who I did not know 6 + weeks ago, more than I have been from anybody in my life including my family, my spouse. And you know... it's not because my family/spouse don't love me, but they just don't get it as much as they may or may not want too think they do. That's one of the wonderful things I have found about this site is that you can get on it anytime you want to, you can complain, you can ask questions, post happy to sad things and you can ask for feedback too... it seems to be that you can say things that are Fibromyalgia related or not, and you will probably have at least one, if not many replies to your posting. I hope that you find some pleasure and comfort in becoming a member of this form...as I have. Another reason I wanted to reply to you is your last sentence talked about you enjoying art and crafts. I also have a love for that back I spend a lot of my free time getting project ideas together, looking at things probably as you do online and thinking of all these great things in my head for more than I am actually working on projects lately... Actually much not at all in the last several months. So I completely understand what you're saying, and in the process of trying to organize my world... And get everything in physical order so that it feels a little less chaotic around here, and then maybe I really will be able to take some time begin a project and actually complete somethings. I hope to one day get to a point where I could possibly upcycle and/or create enough things to bring in some income to my family,do something that I easily get list in...(when I can feel up to doing it )and also be in a positionto be hoping for more personally independent financially than I am now... As I have become dependent financially on my spouse due to this chronic illness. I appreciate my husband in so many ways for his commitment to me financially, but I do not care for that part of it...being financially dependent, as It makes me feel stuck at times... Anyway I'm so glad to meet you and would love to talk to you anytime about our common interests arts/crafts and obviously, lol, . fibromyalgia. Before I go... I want to feel like I know this is a really long post but sometimes it just comes out that way, so take what you need from this and you can throw the rest away :)...but do know that everything written here is in love and care for you today!!!

Katherine

Katherineanne profile image
Katherineanne in reply to Katherineanne

Artyann... Sometimes, I'm not do such a thorough job at proofreading before I hit send on replies....some of my sentences might be a bit clunky...apologize for that. Take care.

Kat

andreasuperstar profile image
andreasuperstar

Hi there Artyann - welcome :) - there have been recent posts for new people - have a look back through them for helpful tips.

Artyann What medication are you taking I believe that a lot of the members are taking similar things , and a lot have been to the pain clinic What I'm really saying is that with Fibro you can go round in circles and get know we're Iv got Fibro and Tinnatas so for me I have to take a pill called Loranzapam which are addictive but at least you will get some sleep Another pill I take is pregabalin and pain killers Fibro and RA are horrible so you need to get your head round the whole thing For instance self massage can release a chemical to your brain which helps There are so many things surrounding Fibro What ever you will need plenty of love I don't my medication but that's the way it is

TheAuthor profile image
TheAuthor

Hi Artyann

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information.

fmauk.org/

I am so genuinely sorry to read of your struggling and suffering and I sincerely hope that you can find some resolution and relief to your issues.

All my hopes and dreams for you

Ken

I would just like to say welcome. :)

There are a lot of people on this site who love doing arty, crafty things. Some things that we loved to do we sometimes find causes us more pain, for me it is using a sowing machine.

So as well as the things i could do i have taught myself new crafts from the web and at the moment i am trying out mixing needle tatting and beads to make jewelry. What i am going to do with it i have no idea.

It keeps me occupied.

More than one has taken up adult colouring books and produce some wonderful pictures.

I may be that being a newbie your meds havnt been sorted yet and that when they are you will be able to do the things that you like.

See you around

Sue :)

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