Hi, I was diagnosed with M.E in 2009, and medically dismissed as a civil servant not long after. Over the last 8 months I have found the pain levels have increased, so I am now thinking it's fibro instead. I also suffer with RLS for years. I take several medications which have balanced my symptoms to a certain degree, along with pacing myself etc. But the pain is increasing, will be returning to GP for further diagnosis. I expect several others have had this as a misdiagnosis, but wonder how seriously I will be taken and even if the GP will bother to change my notes.....

5 Replies

  • Hi

    It's entirely possible it's not a misdiagnosis. I have both ME and fibro and many sufferers do.

    If your main problem when you were diagnosed was fatigue and post exertional malaise then ME would have been the correct diagnosis. If the pain is the worst symptom now then you could also have developed fibro.

    That was the way it happened for me. I now find I fluctuate between pain and fatigue being the worst symptom so my GP says I have both.

    Sorry probably not what you wanted to hear but it is much more common than many people realise.

    Gentle hugs.


  • Thanks Margaret. The fatigue has always been bad, and the pain has always been there, but has worsened. I have a telephone appointment with my GP on Friday, so will see what she says, many thanks for the reply.

  • Approximately 40% of ME patients also have Fibromyalgia sometimes called a sister disease as they share many symptoms.

    Good luck with finding some pain relief at the doctors.

  • Hi Secondhubby

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance.

    I have pasted you a link to our mother site, FMA UK which hosts loads of useful Fibro information:

    As your other respondents have said, it is possible to have both Fibro and ME. It is something that may be worth discussing with your GP when you seen them? However, please keep your options open with your GP just to get other medical conditions ruled out of the equation.

    I want to genuinely and sincerely wish you all the best of luck.

    All my hopes and dreams for you


  • Maria Iv just meta girl called Maria How wonderful it sounds Maria Maria Maria. PJProby

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