A colleage at work the other day was complaining about a pulled muscle and I offered her sympathy, she asked if thats how I felt. My reply was treble it, imagine your arms feel the same, maybe your neck and that your hands are on fire and your somewhere close. I said all this with a smile because what else can you do? She asked how I stand it and my honest answer was" I dont know!"
She said, with all sincerity, oh I hope you get better soon. I explained That it doesnt get better, that this is it, for the rest of my life, I could see she didnt understand. The trouble is unless you are experiencing it I suppose its almost impossible to understand that pain with no apparent cause can just go on. I wouldnt wish this on my worst enemy but just sometimes I wish they could expirience the hurt of knowing your stuck in agony for the rest of your life, just for a moment feel the emotional pain, if not the physical.. Then maybe they would understand why those of us with it dont always welcome every day with open arms.