Fibromyalgia Action UK
38,676 members50,937 posts


A colleage at work the other day was complaining about a pulled muscle and I offered her sympathy, she asked if thats how I felt. My reply was treble it, imagine your arms feel the same, maybe your neck and that your hands are on fire and your somewhere close. I said all this with a smile because what else can you do? She asked how I stand it and my honest answer was" I dont know!"

She said, with all sincerity, oh I hope you get better soon. I explained That it doesnt get better, that this is it, for the rest of my life, I could see she didnt understand. The trouble is unless you are experiencing it I suppose its almost impossible to understand that pain with no apparent cause can just go on. I wouldnt wish this on my worst enemy but just sometimes I wish they could expirience the hurt of knowing your stuck in agony for the rest of your life, just for a moment feel the emotional pain, if not the physical.. Then maybe they would understand why those of us with it dont always welcome every day with open arms.

3 Replies

Totally understand what you are saying because we live with it ... I had trouble explaining it to people when i was diagnosed and found a passage in a book called ' Inside Fibromyalgia With Mark J. Pellegrino, MD' entitled Imagine this

I found that the spoon theory helps explain the fatigue aspect of FMS

Like you say however unless they experience it for a day they will never know but this might go some way in helping gain awareness of what us FMS sufferers go through.


Just read the spoon theory, almost made me cry its so close to how I feel.


I agree - made me cry and I explained it to my boyfriend who was already very understanding but it helped alot!


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