Lumpy muscles

[jellynpain]

Hi All,

I noticed relatively soon after becoming unwell with CFS/ME and FM that alot of my muscles felt lumpy (thigh, wrists, arms, neck side & back).

Does anyone have this?

X

[TheAuthor]

Hi jellynpain

I am so sorry to read that you are suffering in this way, and I genuinely hope that you can find some resolution and relief to this issue. I have found that on occasion that I get a similar issue, especially if I have overdone things?

I have pasted below a FibroAction fact sheet pdf file which does discuss this problem, so I hope that you find it useful:

fibroaction.org/Documents/F...

I have also pasted you a link to a previous post relating to this issue:

healthunlocked.com/fibroact...

I want to wish you all the best of luck with finding some answers to this problem.

All my hopes and dreams for you

Ken x

[Jjudith]

Over 70% of people with fibro also have myofascial pain syndrome. That means that the centre of the muscles form a knot, the rest of the muscle is taut and stretched, and the fascia or covering of the muscle distorts, causing pain. Sometimes they are active, ie., causing pain, sometimes they are latent, which means that they are not causing pain but they weaken the muscle.

They can be treated by trigger point therapy and I do my own, using a book by Clare Davies called Trigger Point therapy workbook, or you can go to someone who treats trigger points, for example someone who does deep tissue massage or sports massage, or someone who does myofascial release. I like to treat mine myself because I can work on pain as it comes and I don't have to wait to see a therapist, and it is easy to do.

It sounds as if it might be what you are noticing. I hope this helps. hugs x

[jellynpain in reply to Jjudith]

Thank you so much for replying. Surprisingly you are the only reply I received (considering its common place in FM).

You have put my mind at rest as I have told my gp who was flumaxed lol. Absolutely no idea.

The muscle areas I can feel the lumpiness are not my main pain areas. I do have poor mobility & wonder if this is a large contributory factor.

Best wishes x

[Jjudith in reply to jellynpain]

It is really strange that most doctors don't know much about trigger points and trigger point therapy. I hope you can get some of the trigger points dealt with as it might improve your muscle strength and your mobility. It has been a life saver for me, as I have a bad reaction to most medications so I have to deal with pain in other ways. Good luck and hugs x

[jellynpain]

Hi and thank you,

Unfortunately my Dr hasn't/isn't doing anything with regard to FM, he continues to tests though for my ever variation/increased symptoms (also diagnosed CFS/ME).

There doesn't seem to be 100% differentiation between the two, even with sufferers.

What should I be asking my Dr to do for me in relation to FM?...he does listen to me.

The pain clinics in my area are pretty much going on hold. Alot of their patients have been removed from their clinics even though not helped. I'm not interested in going to 'talk about' pain clinic groups, pointless.

Best wishes,

X