Help: I have been backwards and... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,444 members66,490 posts

Help

wall1409 profile image
2 Replies

I have been backwards and forwards to a rheumi and diagnosed with OA lumbar spine and fibro. My mobility and pain is ridiculous and waiting to attend pain clinic in October. My bloods are showing canca positive but I don't have an inflammation marker. I have problems with my digestive system and bowels also had blood in urine for months. My GP has mentioned Lupus but rheumi wont diagnose because of blood results now my eyes are extremely dry and blurry so having to use gel. I am 51 next month work full time in a customer service centre but allowed to work from home 3 days per week which without that I would not be able to cope. This has gone on for almost 2 years with poor mobility and pain but like now I am having a flare and could sit and rock with all over pain

Written by
wall1409 profile image
wall1409
To view profiles and participate in discussions please or .
2 Replies
janlou profile image
janlou

Hi I have been told I have fibromyalgia in April this year. My bloods show low vitamin D and my inflammatory markers are always high, but I have no swelling in my hands or feet. What does your bloods show?

Jan x

wall1409 profile image
wall1409 in reply to janlou

just states canca positive but no inflammatory marker they don't really explain

You may also like...

Help!!!

point is what doesn't work for you may work for me. Is any one benefiting from pain relief from...

Help

but only recently have I had so much pain altogether at once. I’ve been 7 weeks off work already....

help

diagnosis of sle seems to have swayed towards fibro after 10 years. my rheumy has told me to take...

help

wrong, seen my GP they have referred me to pain team but still waiting, I have all the symptoms but...

Help!

with regards to digestive issues and costochondritis. I have been in constant stomach pain, back...