Success stories with adenomyosis

[Shwet_16]

hi everyone,

I am looking for success stories with moderate adenomyosis. I have been doing on my own research on down regulation protocol but it’s all very confusing. I would be grateful if anyone can share protocols that worked!

Thank you 🙏🏻

[DianeArnold Partner Nurse Fertility Network UK]

Hi. Not much help I’m afraid, but I have seen successes. If you can find a specialist with added interest in the condition, you would be more reassured. Perhaps someone could PM you with a name. All the best. Diane

[Shwet_16 in reply to DianeArnold]

Thanks Diane. Hoping for some responses.

[Puddle-Duck in reply to DianeArnold]

Hi Diane,

How does someone find a specialist in this condition? I have been looking and there is no one I can find in the uk who specialises in Adenomyosis as a fertility issues?

[DianeArnold Partner Nurse Fertility Network UK in reply to Puddle-Duck]

Hi. I hope some of the other ladies have sent you PMs with suggestions as I am not permitted to name clinics or specia.lists., as it is considered advertising. You could also try emailing the HFEA hfea.gov.uk Diane

[Puddle-Duck in reply to DianeArnold]

Hi Diane, I was more looking for a database or something I could use rather than specific clinics. All of my searches have come up with not a single consultant who actually looks at adenomyosis and fertility. I’ll try HFEA. Thanks

[TTC0011]

Hey I have adenomyosis - I’ve unfortunately had 3 losses so I’m probably not the poster child for success. I am currently pregnant from my 8th transfer and hoping for the best but being realistic. Below is what helped me:

Down regulation - minimum two months

Steroids

Clexane

More frequent estrogen patch changes (once every second day than twice a week)

Injectable progesterone along with pessaries

Probiotics

Magnesium

[Shwet_16 in reply to TTC0011]

I am so sorry to hear about your losses. I hope everything goes well time. This is such a tough journey! I sometimes feel like giving up.

Thank you for sharing your protocol.x What steroids have you been given? Were you asked to down regulate? I am thinking of asking for down regulation but my doctor thinks it’s not necessary !

[TTC0011 in reply to Shwet_16]

Hey

I always down regulated at the request of our clinic but we moved clinics (and moved to donor eggs as I was 39 and we had male factor so a perfect storm) and they increased the down regulation from 2 weeks to 2 months. I’m on presnisilone 20mg and Clexane 40mg. Not every IvF doc really understands adenomyosis so we researched and found a clinic where the consultant had a research background and really understood adeno.

I know what you mean about giving up - if this pregnancy ends in a loss then we’re going to move on childless not through choice, we can’t keep continuing.

[Shwet_16 in reply to TTC0011]

Thank you. Could you pls share the details of the clinic. Can you DM me pls?

[Weegran20 in reply to TTC0011]

Could you please send me the clinic specialist , I’d be very grateful . My daughter has this and had just had a 2 nd failed attempt .

[keepfaith1982 in reply to TTC0011]

Could you also DM me the clinic details too pls? Thank you

[Shwet_16 in reply to TTC0011]

hello, how are you? I wanted to ask did you do EMMA/ ALICE / ERA before down regulation?