For those of you who've had successful treatment, we have a completely separate group for support and to connect with others who are in a similar situation. It's a great place to post and to discuss things.
There is a closed Facebook group and there are also monthly online meetings, sometimes with speakers, where you can get together and ask questions. You can email kate@fertilitynetworkuk.org if you want more details and you can join the Facebook group here - facebook.com/groups/Pregnan...
Hi Kate, I am as referred to this group before on this forum. However, it is on facebook. Not sure about other but I am not comfortable talking about something as private as in/fertility topics on facebook under my name with the privacy concern surrounding that platform. Perhaps there could be a section on this platform for successful treatment people?
Completely agree. I joined it and haven't used it. I know it's closed but I don't feel comfortable using it and i'm not keen on the notifications coming up on my feed. I am probably going to leave it (no issue with what's posted etc, just the platform). Would be great if there was one on here.
Thanks for your responses to this. We do completely understand that not everyone wants to be on Facebook and we have some members who've created separate profiles just to use to join the group.
If you want to come along to the meetings without joining the group, that's completely possible - just email me.
I will also raise the possibility of a separate group on here and see whether that might be feasible in the future.
I actually tried to sign up to the Facebook account and couldn't because of this reason. I got an message from the admin to ask me to answer questions about myself and my pregnancy to make sure I was in the right group. After 7 years of a traumatic journey with multiple losses through IVF I really struggled to tell anyone that I was pregnant (I still struggle and panic everytime someone asks me how many weeks I am even though I look very obviously pregnant). It felt impossible to fill out the needed questions and I left this as feedback for the site. Having an anonymous space like this forum would have helped me so much.
I am so sorry you felt that way about the questions. The reason they are there is to protect everyone in the group. We do sometimes get people who are still trying to conceive trying to join the group by mistake or researchers who want to ask questions. There are only two questions and we always message people to say they hope they understand why we are asking them.
The good news for everyone is that we are planning to set up a separate forum here for you!
That is great news! I really did understand why those questions were there but as I said then, I just could not answer them for completely emotional (and probably irrational) reasons. But to be honest (and I really don't want to be difficult or anything, just give some feedback) is there not also a need for pregnant women still to be a part of this community? I never liked the standard pregnant questions, the early scan updates or the birth announcements while ttc. But I often appreciated the tips and advice women had to offer especially when these turned out to be successful for them. This knowledge was invaluable. And if there really are no success stories this may also affect the positivity on this site. The issue for me was that a happy birth story would not just appear once on your news feed but especially if someone had a particular large following, such a story would appear on your feed for months! And particularly when this person had cycled around the same time as you and you had gone on to have another loss, this is really quite difficult to deal with. So my thought was alway: is there no way to have a mute button on this site? Just as you have on Twitter and Facebook. In this way you can quickly filter your news feed and if there is a not very helpful update, you just see it once. It may not be possible but now I have the opportunity to say it I'm just going to throw it out there.
Thanks!
That’s great news, Kate. Will look out for a post to join. At the same time as IvfStruggler is pointing out below. Success stories were helping me survive psychologically when going through multiple misscarriages and then multiple rounds of ivf. When I was on the journey in the lowest point, I was reading a very long thread on another forum and saw people getting pregnant over time and it honestly kept my head above water. I feel I can now share what I learned about the process and hopefully help someone who is still ttc.
And also, psychologically, after multiple losses and knowing about things that can still go wrong, there is almost a mental barrier to move over amongst pregnant people because of how fragile it feels after all the struggle and the fear that things can go wrong overnight. Something like what the below post is describing.
Saying all that, will happily join the other group when available to give it a go.
There are two other groups on HealthUnlocked for people who are pregnant or post birth - Baby and Us (which I think was created by an ex Fertility Networker) and also the NCT group x
Thanks for this Daisy - we are going to set up a separate Fertility Network forum here for those who've been successful as we recognise how difficult this can be.
Questions for doctors
Successful IVF
Is 42 too late for successful IVF?
Accupuncture questions
Important Questions.
