Question for very very / undetectable AMH…

Hi all,

I’ve got a question for any fellow low-AMH ladies…

The NHS tested me and said “it’s 0.6 - low” however they didn’t confirm if it’s’ pmol/L or nmol/L - I’m guessing it’s the former of pmol/L, which makes me a very very bad ivf candidate I believe. So I was wondering if anyone on here knows 100% if NHS use pmol/L instead of nmol/L?

And also any success stories out there with AMH as low as mine (or lower)?

Thanks everyone,

Lulu 🌺

[Purpledoggy]

It’s pmol/L. Xx

[Hidden in reply to Purpledoggy]

Thank you - I thought that may be the case (😬😥). They say miracles do happen, so hopefully I get to defy the odds!! Thanks 🌺 x

[Purpledoggy in reply to Hidden]

Really hoping for the best for you-you just never know xx

[Hidden in reply to Purpledoggy]

Thank you 💛

[Purpledoggy in reply to Hidden]

One thing that occurred to me - ask your clinic is about DHEA. It won't really increase your AMH per se but can optimise the response of the ovaries when AMH is low. Lots of ladies take it without prescription after having theirs tested, but I think when you have really low AMH it would be best to get your clinic's input. xx

[Hidden in reply to Purpledoggy]

Thank you - I will 100% ask about DHEA as everyone mentions it. I’ve started taking extra Vit D, Spirulina, Wheatgrass, CoQ10 and did a first 5mg cycle on Letrozole (like clomid). Also started Accupuncture this month (already on the standard prenatal supplements).

I’ve also started a “fertility diet” and have a second AMH blood test in 4 weeks - so will be interesting to see if my bloods have improved or not (hopefully not worse!!)

Thank you x

[Hidden in reply to Purpledoggy]

Hope you don’t mind Purpledoggy but I’ve just followed you x 🌺

[Purpledoggy in reply to Hidden]

Totally fine 🙂 xx

[Marisa32]

I got pregnant naturally with my 1st with AMH of 0.52 ng/ml and now pregnant with my second with AMH below 0.16 ng/ml. IVF didn't work for me though, as my body never responded to stims and only ever produced 1 follicle. It seems that low AMH doesn't really prevent you from getting pregnant but it will be near impossible to get many follicles with traditional IVF stimming. Mild or natural IVF with embryo banking is usually the way to go.

[Hidden in reply to Marisa32]

Thank you Marisa. I think my AMH in ng/ml is about 0.07 - so if they can just get 1 then I’ll be made up!! The clinic I’m looking at do offer banking and mild IVF, so hopefully there’s a plan (not ready to go straight to Donor yet!). Thanks, Lulu 🌺

[jengi]

The NHS use pmol/L. I had AMH of 1.4 at 38 so I empathise with you. I see that you are following me, please don’t hesitate to reach out and private message me if I can be of any use. I found counselling very helpful and wish I’d started it early to deal with the low AMH. I know it’s hard to hear this but donor is likely to be your best option but you may want to try with your own first. I did. I won’t lie it took me ages to accept that my eggs were not only low in number but poor quality too. Learning about the quality really helped me emotionally to move onto the donor option. Of course, I only learned this by going through a few cycles. There is no right or wrong decision here, you listen to your gut and do what’s right for you. Big hugs Xx

[Hidden in reply to jengi]

Thank you 🌺I’ve been reading a lot about Donor - the good, the grim and the emotions to expect. I’m trying to remain hopeful for my own eggs, but Donor will be our Plan B. It’s a shame that I don’t have a sister - because it’s the genetic link (to me) bit that I haven’t got over yet. It’s been 3 weeks today since we got the results, so it’s early days I guess. But faced with the option of no children and no legacy Vs Donor, then I’d rather opt for donor. My husband is aye-okay, so at least one of us would have the genetic link and the other would have the gestational link.

There just aren’t too many stories out there about women with these fears (of donor) who went on to succeed and never even thought about it again.

This is so hard - wish us ladies could re-create eggs like men do with their tadpoles 😥

Thank you so much for the reach-out, I’m not far from the bottom at the moment and no one around me really understands, so I appreciate it so much, I really do xx

Hope your journey is going well xxx

[Capricorn41]

I had AMH level of 0.54 pmol. I got pregnant first time with own eggs at aged 39. I did use donor sperm though and that might have have something to do with it as didn't have a partner who may not have had the best sperm. AMH is just an indictor of how many eggs you will get out egg collection not whether you can get pregnant and what medication level you will be put on. I would try with your own eggs first. Just try to keep healthy and take vitamin D and folic acid this will improve egg quality. But, I was like you and very upset about low result but, I still got pregnant and had a healthy baby.

[Capricorn41 in reply to Capricorn41]

I will say I knew one women with normal AMH for her age who was advised to have two embryos transferred because of not best quality embryos. She stuck with the one and still got pregnant, everyone is different in this journey.

[Hidden in reply to Capricorn41]

Wow that’s so encouraging to hear. Thank you for sharing xSo I guess you also have to stick to your own 6th sense sometimes - I have read of people who were told to abandon their eggs, but stayed with it and succeeded in Live birth. Hubby and I have discussed how far (emotionally, financially and scientifically) we would be prepared to go with this, so crossing all fingers and toes!!

We now have our first consultation and results with the private clinic on 13th July (tests before-hand) so we’ll know more then. Hoping for some plan A’s and B’s at the moment!!

Thanks again x

Lulu 🌺

[Capricorn41 in reply to Hidden]

Good luck with it all xx

[Hidden in reply to Capricorn41]

Thank you xI’ve just followed you - hope that’s okay 🌺

[Capricorn41]

Yes, great xx