Just wanted to say a big thank you to everyone who posted replies and information. It really helps to know you’re not alone and to read about other people’s experiences.
Yesterday was a roller coaster. I felt something was off. I looked on my ‘MyChart’ and saw that the biopsy was no longer showing, but there was an appointment for a Fibroscan.
Long story short…after several phone calls, the MA of my Hepatologist told me that ‘after further review of my MRI, the Dr now thinks that the fibrosis is not as bad as she initially thought’. She cancelled the biopsy and I’m now having a Fibroscan on Monday instead.
Although I had a flush of relief. It has left me with more questions and feeling less confident about her.
When I look back on my appointment, She didn’t know I’d had an MRI until I told her. I guess she was playing catch up and was looking at my US which she had stated ‘was very grainy’.
Well, I guess I will find out more next week. Just don’t want to be flip flopping between extreme worry to relief, then back again!! 🙄
Written by
RosieCheeksUK
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The problem I have is everything I’ve had done ultrasound , 3 fibroScan , Elf blood test have all come back with different severity of disease. First ultrasound had me at possible cirrhosis then had a fibroScan that said no fibrosis then two more fibroScan showed moderate and an Elf blood test that came back normal. All my liver blood test have always been normal. This is why the doctor said the only way I’ll know if there is really damage is to have the biopsy. I’m not happy about a biopsy but thanks to the many that have told me it’s not as bad as I pictured I’m going to move forward with the biopsy so I don’t have to obsess about this every darn day . My brother passed away from cirrhosis so it only adds to this stress. I’ve never drank so this occurred because of poor food choices. Thank God for this group!!! I don’t know if I helped you but I hope I did.
I am not that knowledgeable, but I’d suggest thoroughly reading the website Fatty Liver Foundation to understand the disease, the things you can do to take care of yourself, and the tests you might consider. fattyliverfoundation.org/wh... I would recommend getting as many of the diagnostics tests as you can, starting with non-invasive which includes blood tests (get a LiverFast panel -even if you have to pay out of pocket- and plug your blood tests numbers into FIB4, etc. ) and Fibroscan. See what these tell you and then consider biopsy (the gold standard, but invasive). Most importantly, lose weight, change the foods you eat, and exercise. This is the only treatment out there. Your pain may decrease or disappear if you cut carbs and eat as suggested in other posts here and on the Fatty Liver Foundation site. This is the treatment for life and you can totally do it and improve your liver function.
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