Not feeling very confident about my health

[Amethyst91]

Since first finding out about my mild fatty liver in May I feel like everyday has gotten worse. I’m a 28 yr old female that weighed 137lbs in May at the start of all this and now only weighs 116lbs as of today. I will say I’ve cut out fast food and obviously alcohol but I’ve never lost weight like this before when I was seriously trying to. All I’m doing now is sticking to a cirrhosis diet as I’m both terrified and almost sure that’s what I might have. My URQ is constant with no relief and now my neck and shoulder are also at a constant ache. In the beginning I did do some running and I’ve tried to keep up with it t least a few times a month as I’ve never been a runner my whole life. I was doing 1.64 mild at mostly a jog with a few slow downs and today I couldn’t jog at all and just tried to power walk which kicked my ass more than running ever did. I’m terrified that I’ve only gotten worse even with my attempts at getting better. I pass all my blood work except mild bilirubin which has gone to the higher range of normal since quitting alcohol and I passed my fibrosure or Fibrotest blood work all as stage 0 but considering if you looked at my blood test it would have never shown the fatty liver I’m not sure if I trust any type of blood test I get. I’m getting a fibroscan on Thursday and it’s all I can think about. Does anyone have experience with Fibrotest being negative but fibroscan showing much worse? Or does anyone have experience with fatty liver causing the pain I’m in?

[nash2 Partner]

Hi Amethyst

It seems clear that something is going on. How were you diagnosed with mild fatty liver in May? Fatty liver doesn't progress that quickly so it is likely that you are looking at something else here. The FibroScan will help you understand something about the physical situation but may not guide your doc regarding a diagnosis. Are you working with a hepatologist? That is very important given your symptoms. You will probably need a thorough liver workup to figure this out. We can't give you much guidance, but problems like plugged bile ducts can escalate quickly and you need someone with liver training to sort this out. Hope that helps a little.

Wayne

[Amethyst91 in reply to nash2]

I’ve had almost a full work up besides biopsy and fibroscan. My blood work has always been perfect besides slightly elevated bilirubin. I have a history of drinking for about 10 yrs so I’ve always asked about my liver. 2 yrs ago I didn’t have fatty liver on the ultrasound but this May mild fatty liver showed up. The drs gave me a ct that showed 20.9 cm enlarged liver but they don’t care about it cuz they said it showed a normal variant called Riedel’s lobe and don’t care at all about my pain, itching or shortness of breath or heart rate. I had a HIDA scan that was normal and a fibrosure blood test that was all 0. I’ve finally complained enough that I’m seeing a Hepatologist on Thursday and hopefully will get a fibroscan that I’m terrified to see the results of. Sadly I’ve read a lot of times ppl with good blood work and mild fatty liver turn out to actually have cirrhosis so I’m terrified my whole life is about to get flipped upside down this week.

[Mof7jz in reply to Amethyst91]

Please let us know what you find out. I will keep you in my prayers. So sorry for the uncertainty and the fears that come with that uncertainty. Fear can really impact your health as well. As much as you can, I encourage you to Give this to God and not dwell on the what if’s. It won’t change anything, But can make it worse. Praying for peace and good outcome. In the mean time take milk thistle and drink dandelion tea, both for liver health.