Ramsay Hunt Syndrome

I was diagnosed with Ramsay Hunt Syndrome January 26, 2015. I had Bell's Palsy twice, once when I was a young child then again at 25 when I was pregnant . I am now 38. I had gotten shingles in my ear. It by far was the worst pain ever. I recognized the numbness starting under my nose. I left work early and went straight to the ER. I was prescibed steriods and antibotics along with some pain medication. it didn't help. I tried to get my Dr. to hook me up with a botox specialist but he sent me back to a neurologist and request for MRI. The MRI revealed that I had an aneurysm on my carotid artery about the size of my fist. This was in April just 4 months after I gotten the Ramsey Hunt . I had to get emergency surgery , they did endovascular coiling and two stents . Six months after surgery my aneurysm is gone. My Ramsey Hunt hasn't changed much. I still can't raise my eyebrow. I can do a very slight blink now, but it used to be wide open. My hearing has came back and tinnitus is gone . Now when I smile( which is still very crooked and ugly) my eye will shut. I am so self conscious. Eating and drinking are a challenge but I have learned to manage. Being that it is going on a year is it more then likely to now stay like this? Will Botox help? I am just a shell of the women I used to be.

2 Replies
oldestnewest

Yes do go for the Botox option it brought back the symmetry to my face. It is not 100% but at least it has given me my self esteem back. Best wishes and good luck

Chantev

Reply

Hi. Another avenue to explore is the two step reanimation surgery which is a cross facial nerve graft followed by a muscle graft. Info is on the Facial Palsy UK Website. good luck

Reply

You may also like...