So my son....in the past 18 months.... 7 movicol disimpactions, 12 hospital enemas, 6 rounds of klean prep, countless hospital admissions, bloated and unable to pass wind, constant pain and soiling, incontinent of faeces, school attendance hitting 33 %... behaviour very violent, emotionally so disturbed actually suicidal for a while.....now after the intervention of a wonderful paediatric surgeon.... NO SOILING, FLAT TUMMY, HAPPY RELAXED BOY, ATTENDING SCHOOL, as he said to me a few days ago βMum Iβm not angry any moreβ
Heβs using trans anal irrigation (balloon system) every day at home and having bowel washouts in hospital if needed on top although Iβm hoping theyβre going to train us to do them at home if needed. Turns out despite x Rays being repetitively clear he was totally loaded with soft poo. Only found out when he had his op. Pls msg me if youβre at your wits end or google Peristeen/ qufora and get in front of a surgeon to discuss, good luck!
Written by
Robinia
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After 3 years of dealing with this chronic refractory constipation with mild results, weβve finally seen a paediatric surgeon who prescribed Peristeen. Weβre currently on 1.5 Movicol sachets and 2 tablets of Sennokot daily, and Microlax enemas every 2nd or 3rd day. Still, dealing with lots of smears in undies. Weβve done many disimpactions over the past 3 years. My boy is now 7.
We had great success and then went backwards, now itβs a bit better but still a work in progress! But so much better than before we had irrigation. Itβs enabled me to reduce his movicol which has massively reduced his trapped wind and associated anger and violence which is a massive relief. My son takes bisocodyl now instead of Senna. Really glad itβs improving things for you as well x
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