Desmopressin has stopped working: My daughter, 13, was... - ERIC

ERIC

9,022 members2,974 posts

Desmopressin has stopped working

Sophyk profile image
2 Replies

My daughter, 13, was put on desmopressin melts (120) which seemed to slightly improve her bed wetting. Then she found out after 2 weeks they're not vegetarian and refused to continue. She was then prescribed desmo tablets which come in 200. These worked great at first - no wet nights for four weeks which was unheard of. Then, she started having accidents again. The nurse put her dose up to 400, then a week dry, but now she's started having wet nights again. Has anyone else experienced early success which tailed off? It's really frustrating. What next?

Written by
Sophyk profile image
Sophyk
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Bigcurlybird profile image
Bigcurlybird

Hi there. I feel for you. My almost 11 year old daughter has always wet the bed. The effect this has had on her self confidence has been severe.

We found Desmopressin was nothing more than a slight improvement and I really don't want her to take other medication if it can be helped.

What HAS helped is this stop-bed-wetting-in-7-days.... she has been through the program 3 times now. It worked really well and then she relapsed a bit so she did it again, then again.

I also bought her an alarm clock to get her up to use the bathroom about midnight.

She has gone from being wet every single night to maybe twice a week. This is a major improvement. She is much happier. On the nights she is wet she has usually consumed a trigger, dark squash, fruit, too much sugar etc at teatime. 🙁

Maybe worth a try. Good luck x

Sophyk profile image
Sophyk in reply to Bigcurlybird

Thanks for your reply, we’ve tried the Alicia Eaton programmes many times and never any effect. The Desmopressin seems to be working again(?!?). It’s actually the only thing that has ever had any effect. We’ve tried all the hypnotherapy things (no effect), alarms (no effect but made us all lose sleep) etc. The other thing I was thinking we could try is a chiropractor, which some people seem to find helpful. I’m thinking though that the times the Desmopressin didn’t work may have been linked to higher stress times, like tests at school. She never really has any of the ‘trigger’ drinks. Is eating fruit a trigger? I’ve not heard that before. Luckily it doesn’t seem to hurt her confidence, she seems pretty resilient through it all.

Not what you're looking for?

You may also like...

Desmopressin no longer working

Hello my 10 year old was prescribed desmopressin and told to take 1 pill at night which seemed to...

Nightn nappy or not for my 7yr old

Hi I'd really appreciate some advice. My 7 year old daughter has pretty much always been wet at...

8 year old Overactive bladder and 2 night away school trip! Please Help! Incontinence support

Hello All, I am after some help and reviews regarding incontinence products for children that...

Secondary school accidents?

I'm a little bit worried about my daughter, she is 12 and in the last couple of weeks she has had...

Has anyone stopped movicol /medication altogether?

Has anyone stopped their childs medication altogether.. My daughter had been on movicol for 9...