Desmopressin has stopped working: My daughter, 13, was... - ERIC

ERIC

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Desmopressin has stopped working

Sophyk profile image
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My daughter, 13, was put on desmopressin melts (120) which seemed to slightly improve her bed wetting. Then she found out after 2 weeks they're not vegetarian and refused to continue. She was then prescribed desmo tablets which come in 200. These worked great at first - no wet nights for four weeks which was unheard of. Then, she started having accidents again. The nurse put her dose up to 400, then a week dry, but now she's started having wet nights again. Has anyone else experienced early success which tailed off? It's really frustrating. What next?

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Sophyk
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Bigcurlybird profile image
Bigcurlybird

Hi there. I feel for you. My almost 11 year old daughter has always wet the bed. The effect this has had on her self confidence has been severe.

We found Desmopressin was nothing more than a slight improvement and I really don't want her to take other medication if it can be helped.

What HAS helped is this stop-bed-wetting-in-7-days.... she has been through the program 3 times now. It worked really well and then she relapsed a bit so she did it again, then again.

I also bought her an alarm clock to get her up to use the bathroom about midnight.

She has gone from being wet every single night to maybe twice a week. This is a major improvement. She is much happier. On the nights she is wet she has usually consumed a trigger, dark squash, fruit, too much sugar etc at teatime. 🙁

Maybe worth a try. Good luck x

Sophyk profile image
Sophyk in reply to Bigcurlybird

Thanks for your reply, we’ve tried the Alicia Eaton programmes many times and never any effect. The Desmopressin seems to be working again(?!?). It’s actually the only thing that has ever had any effect. We’ve tried all the hypnotherapy things (no effect), alarms (no effect but made us all lose sleep) etc. The other thing I was thinking we could try is a chiropractor, which some people seem to find helpful. I’m thinking though that the times the Desmopressin didn’t work may have been linked to higher stress times, like tests at school. She never really has any of the ‘trigger’ drinks. Is eating fruit a trigger? I’ve not heard that before. Luckily it doesn’t seem to hurt her confidence, she seems pretty resilient through it all.

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