Thought I would just give you all a quick update on daughters latest appointment (I know I love reading other peoples to get any ideas or at least a sense that there is still hope!).
Quick back history....long and tortuous journey but we finally got under care of specialist bowel and bladder clinic about a year ago, diagnosis overactive bladder, been trying TENs and Tolterdine, managed to increase bladder capacity which felt like a big step but still daily wee accidents and felt like we'd stopped making any progress. Been back to Evelina today, this time had full ultrasound, all good with kidneys, tubes etc, bladder got wonky wall near rectum and rectum very full! Constipation never been discussed as an issue before as she goes every day and big solid poos, usually number 2 on the stool chart, but never any discomfort. Ultrasound clearly showing that there was a lot of poo in there (with no sensation for needing to go and having just been for a wee) and rectum was stretched to 43mm wide (abnormal!!). We've now been put on to Senna. Given she doesn't have any pain or witholding issues, the hope is that this will encourage her to go sooner and therefore keep passage clear so that it doesn't press onto the bladder and then that will give the bladder meds a chance to actually work on the overactive bladder (which is still there!).
I was really worried before we got there that nothing seemed to be working so pleased at least that we've got something else to focus on. The always warned us it would be a long road, even once we had the official diagnosis. They were definitely right on that although think would describe as more of a rollercoaster than a road.
Virtual hugs to everyone out there having a bad day, for us today felt like a good day so hope you all have a good day soon too. xx