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Epilepsy South Africa

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My name is David, I grew up in eastern Africa where being epileptic is a taboo subject. I started having seizures around the age of 12-13, the good thing is I had a great support system. No stress helped me during my 3 last year of high school with no seizures. So I came to south Africa in 2010 to pursue my university studies as a nerdy guy I went for Mechtronics, which includes automation and robotics. I loved it, I taught kids from under privileged background how to build and program robots. I was active as my epilepsy was under control. In 2012 it comes back but few seizures per year or no seizures, I started seeing my parents judging me that it must be me I stress a lot etc... I reduced classes so I can be fine. But that means I will finish a year after or 2 than what I was supposed to, but all went well, I finished my diploma and went for a degree. So while applying for jobs, my cv had health condition epilepsy, I didn't get any call, my brother asked me to see, he told me to remove it that is why I wasn't getting calls.

The month after I removed it and sending it to the same companies, I started getting calls. A new chapter started, which was more stressful I got 2 jobs at the same time and as an engineer it stress after stress, I didn't mind but the boss didn't know that I was epileptic, I told my co-workers,but as soon as I got my first seizure, thanks for him my contract was up it wasn't renewed, I had a second job to fall on, but I had a seizure before I sign a permanent position that was just opening, they dragged to sign the contract for 3 months until they started "retrenching" and as I was the last hired I was top on the list. My hr manager told me that I should disclose my condition in every interview, she wrote me a really good letter of recommendation, but since I left it has been 8 months, I go to interviews we discuss everything, money until when can I start, I tell them everything. So I tell them before we both make a decision, I am epileptic, I wanted to disclose it. I can see their faces change, for 8 months I have been to more interviews than I can count.

People around me don't understand why, they are like give yourself a timeline, do that, sometimes they will be like you had 7 years without seizures, why can't you do that.

I ran out of explanation, last month was the hardest, I had like 5 interviews. Still waiting on 2. I am considering doing other stuff that I won't like just to make people stop being on my back.

I know they care and their hearts are in the right place but not everyone will be willing to hire what they will consider a liability, I grew up thinking that epilepsy was just a normal life condition, but most people are afraid of it as you dig deep.

Thank you for reading

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David08
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EpilepsySA profile image
EpilepsySAPartner

You can contact the Epilepsy SA Branch closest to you by calling our tollfree number (0860EPILEPSY) for assistance.

David08 profile image
David08 in reply toEpilepsySA

I will contact you.

David08 profile image
David08 in reply toEpilepsySA

Hello, I tried to call the number wasn't going through. I know that the Gauteng branch is in springs it's a bit far from where I am, and due to my current situation, I can't visit them. I have requested to volunteer in the past.

Epilepsy007 profile image
Epilepsy007

Hi David, it is really sad, my daughter is 26 and sits with the same situation, every time she discloses her medical condition at an interview she never hears from them again, and I think it is very important to disclose things like epilepsy. All the best and God Bless

David08 profile image
David08 in reply toEpilepsy007

Hello, Thanks for your blessings. In these situations that is when you realise is small good gesture can mean the world. I hope you daughter get a job soon. may God bless you and your family

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