Epilepsy conditioned Life is a specia... - Epilepsy South Af...

Epilepsy South Africa

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Epilepsy conditioned Life is a special Life

emzin profile image
11 Replies

It is so amazing how are was born as my mother had told me , the doctors predicted that when I reach teenage years something will happen that might affect my brain negatively. Ok.

"But It came to be a positive charge on a later stage "

At my 12th year I had a very violent seizure, that I foamed and bled - it was hard for my family to believe , "apparently I was the first one to have conducted electricity without any cable connection but using my mind " Lol

At high school I never did well, I completed my grade 12 without difficulty and "my writing was out of this world" I went to tertiary later in my life but never finished.

I'm now studying a different course

It was difficult to get through certain things because of the type of life I lived, Socially,

finding a Job it became a hustle, sometimes I had to hide the name I was attached to: ie Epilepsy - I was ashamed to mention it, ashamed of my self

I learned a lot through this challeges

It took a while for me to realize that I had different life; purposeful life, a life of greatness.

Epileptics are special people with amazing characters , and I hope that all who are conditioned with it can realize how great they are and the difference they can impact in the society

We must check the type of people we hang around with (are they making you better or bitter, taking you to a next seizure) and the places we often visit on daily basis; and the music we listen to must be different "like Classic music"

Our level of association must be different, our attitude towards life and towards ourselves and getting around positive people was the best thing I've ever done, people who can take you to the next level mentally. "It all starts with the mind the mind"

"we are not born for every one and not every one is born for us" we are a peculiar nation.

11 Replies
Sasekile profile image

Thanks for sharing such a wonderful perceptive, I read your post with my nephew and such stories give us hope, and keep us positive. I liked this line more - "apparently I was the first one to have conducted electricity without any cable connection but using my mind " Lol... I appreciate the humor in it, it turns what is seemingly scary to appear normal and manageable. Thanks

emzin profile image
emzin in reply to Sasekile

Pleasure Sase, I've' enjoyed this jurney '"ey", it was tough and inspirational at the same time, I know Epileptics who are incapacitated because their families never took time to learn and massively act on getting help... I really appreciate what you are doing ...keep it up... and one day I hope to meet him and be one of his "positive charge" influences

Emzin, I have had epilepsy for 44 years now! I am now 60 years of age. As you say, we must remain positive and keep in touch with positive people... I have terrible memories of bullying at school etc., but at the age of 16 had to accept my epilepsy, be strong willed, independent and carry on with life. I run a page on Facebook which you are welcome to view... Should you want the link please contact me. I am also in many groups which helps get everyone together to find out more information about the subject. Keep smiling!

emzin profile image

That's Wonderful, as birds of the same feather; we must flock to together guys, share ideas ,experiences and information

Let us put our light on top were everyone will see it and keep learning and educating ourselves

in reply to emzin

Hi Emzin,

Thank you for your message... Feel free to follow me on this site first before I can interact with you personally. Thank you.

Tdevilliers profile image

Hi Emzin - thanks for sharing your story. Great to hear your positive attitude - we are all special - I turned my life around by turning negative epilepsy energies into positives by establishing a support group in my mid twenties and sharing experiences, inviting guest speakers, etc. which was great. After 26 years, I closed the group for many reasons, i.e. people moved on and my life became quite full, marriage, family, promotion, sport, etc. Be that as it may, we have one another on this type of medium as well as other WhatsApp and Facebook groups to connect on. Keep cool

Boitumelo92 profile image

Hi emzin im so touched can we be friends i was also born epileptic just that my mother didn't make. can we be friends only

emzin profile image

Thank you Boitumelo, every moment that passes by something gets cut out of our lives; so as an epileptic it gets worse if you don't positively measure your inputs

keep at it.. keep better your best!!

AtiSindz profile image

Hi Emzin, my name is Sindisiwe

I have just joined and I’m inspired by your post.

I’m 22 years in epilepsy, mine was difficult as the family didn’t know anything about it, I was 13 at the time it started, I thought I was dying, blinking a lot then loose breath, bite my tongue and pee myself. It was horrible, I would get seizures two times a week or even two times a day, until I met one nurse who told me to go see one doctor in hospital and that’s where I got all the knowledge about it because at home they believed I was bewitched.

After seeing the medication working I never looked back to something else until now. My greatest wish is to teach others about it that it’s controllable because people are dying with the lack of knowledge.

Working environments are difficult to handle and our communities too, there’s still that stigma when you are epileptic and that must end. Keep inspiring

EpilepsySA profile image

Thank you for sharing. We are preparing a social media campaign for December offering hints and tips from persons with epilepsy. If you are happy to participate please submit your hints and tips to info@epilepsy.org.za with a photograph if you are happy for us to include your name. If not, we will use the information without identifying you.

Jacky_M profile image

Thats so so true

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