How have ppl dealt with these issues. My doctor has advised to take 150 mg but it makes me feel awful I feel OK on lower doses. Do ppl have any suggestions? I have taken topiramate for 9 years now so I'm unsure of what the next step may be. I've trialled Lamictal and it hasn't worked.
Any feedback is much appreciated!!
Hi
I hope you hear from others on this platform, as sharing information and experiences can be a good idea. Can I just check you also know about our other services?
We have our virtual support groups epilepsy.org.uk/virtual-groups. We have our forum4e online community forum.epilepsy.org.uk/, and we are on facebook facebook.com/epilepsyaction and twitter twitter.com/epilepsyaction.
I’m not sure how long you’ve been taking 150mg of topiramate, but some people find side-effects such as this lessen with time as their body gets used to the increase in dose.
If you’ve been taking 150mg for a while, or things don’t improve, it would be a good idea to speak to your doctor about this. They may be able to recommend a change to your epilepsy medicine. Sometimes it takes a little bit of trial and error to find the right medicine at the right dose.
We also have some information on anxiety epilepsy.org.uk/info/anxiety and low mood epilepsy.org.uk/info/depression that you may find useful.
Finally, please feel free to contact our helpline team. You can either email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.
Regards
Jess
Epilepsy Action Helpline Team
New mum with epilepsy 
Diagnosed 1 year ago with epilepsy after 2 seizures. Recently had a third seizure.
Foods after a seizure 
Driving with Focal aware seizures
Newly diagnosed with generalized seizures 
