Hello I have a 16 year old daughter who started to collapse 2 years ago. She has had many cardio tests to get find a cause but they all came back normal. She has also had a a tilt test and a standard EEG which was also normal.she has now had a loop recorder implanted which records any abnormal reading from the heart. When she has collapsed it has caught an episode and I was told by the cardiologist that it is normal and she is suffering from vasa vagal syncope (faints) but her most recent collapse she was shaking for 6 minutes she did not wet herself or bite her tongue. This episode seemed more like a seizure. The heart recording showed the heart raising from 90bpm to 170bpm which I am told is normal by her cardiologist. I am thinking she has epilepsy? During the shaking she was rigid and she rolled onto her front from her back.
She has now had a sleep deprived EEG and another standard EEG which again was normal. She can't have an MRI because of the loop recorder but I am told it would probably be normal. I am still concerned she has epilepsy because I know you can be diagnosed based on symptoms alone and have normal tests. we have gone privately and are at one of the best hospitals so I can't do much more for her I don't know what to do? I know less people are being diagnosed because of better equipment but I feel like we are never going to get a diagnosis of epilepsy or anything. Please share your experiences.