Sometimes I Hate the Fact I Have Seizures

[Oto-obong]

Seizure was a big turn around in my life. I got thrown out of both of my high school’s for seizures. The staffs said they did not know what to do and had asked me to leave school. I explained to them that I am not even close to home as I am Nigerian but they all turned deaf ears. It was hard, I had to move to a friend’s house and my life was a night mare and I just wish I never had seizures. People treat me so differently when I tell them I have seizures. They limit things I do and I have missed so many things and I just can’t imagine how sad my life will be.

[EpilepsyAction1 Partner Epilepsy Action]

Hi. It does sound like you’ve had a really tough time. I’m not sure which country you live in. But you might find our range of support helpful: epilepsy.org.uk/info/suppor....

If you aren’t in the UK you could see if there is an epilepsy organisation is your country: epilepsy.org.uk/about/inter...

It sounds like it would be very good to have fewer seizures. I wonder if it’s possible for you to get any help with this? If you were in the UK I would point you to our information on getting the right treatment and care for your epilepsy: epilepsy.org.uk/info/treatm...

Hopefully you will get other replies on here too. But If we can be of any more help, please feel free to contact us again. You could email the Epilepsy Action helpline on [e-mail]

Regards

Cherry

Epilepsy Action Helpline Team

[Oto-obong]

Thank you so much

[Seaotter2020 in reply to Oto-obong]

Where do you live? Perhaps someday I could train your school on seizure first aid - and the next person would not have to leave. Or I could train you . and you could help train schools! We need to help each other spread awareness. I know African countries have much more taboo and fears. They think they can catch epilepsy. there are so many myths. How can I help? I am so sorry this happened to you!!

[Oto-obong in reply to Seaotter2020]

I stay in Canada Winnipeg to be precise

[Oto-obong]

Thanks for the offer. It’s not about African countries having fear for epilepsy, they treat you as if you have a mental condition. Back in Africa I got thrown out of my high school and my mum had to beg for me to just finish up with my grade 12 since I was already in grade 12. When I got treated at first when I was 16 years. I was given Sodium Valporate (500g) which I took two of. I felt for me it worked since it makes me so tired and I sleep for a long time but the after effect on me was a whole thing, if I do not sleep o have a serious migraine most times I black out for like some minutes. My mum wasn’t fully informed or well educated about seizures so she kept on telling me to take the drugs. When I went to Vancouver, I was told to stop taking Sodium Valporate since it will affect me when I become pregnant and I was given Lorazepam 1 MG..my journey so far with seizures to honest have been so horrible, my education, personal life and social life. When I came to Canada I got relieved cause people saw me normal and I started following up with a neurologist

[Seaotter2020]

Have you connected with the Ontario Epilepsy Foundation there? They are fantastic! I use their videos in my Trainings... my neurosurgeon did an Epilepsy tour in some countries in Africa ( sorry can’t remember which ones- I donated some meds I was no longer on- the need for education and good meds is great. I am glad you are in Canada and have found this site. My Epilepsy effects my memory- does yours?