Hello

Hi, I have had a read through the posts and have been very helpful, I have suffered in the past with ‘night terrors’ for many years before being diagnosed with epilepsy around 6 years ago, I have suffered probably 15 grand mal seizures in this time, after a neurologist appt last week it seems as though I am having seizures in the night which is making me hugely tired during the days making it hard to get out of bed, dress and get into work, when I am they’re I need generally to have an hour sleep in the afternoon due to being so exhausted, I unfortunately am now not aloud to drive again although waiting already 18 months to get my license back which was awful and has put me in a depressive state adding a lot of pressure to my relationship with my other half having to chauffeur me to and from work daily, is theyre help available or has anybody been through a similar situation as I am really struggling to manage a work life balance, for example I have suffered 2 grand mal seizures just this week making me sleep for the most part.

1 Reply

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EpilepsyAction1Administrator

3 months ago

Hi Scottmosley

Thank you for your question.

It sounds like your disturbed sleep is very troublesome. Having seizures in your sleep can cause you to be very tired the next day.

Epilepsy is usually treated with epilepsy medicine, so I hope at your appointment treatment was started to try help stop your seizures. By stopping your seizures hopefully your sleep pattern will also improve. epilepsy.org.uk/info/treatm...

To help with the pressure of having to depend on your partner for lifts, whilst you are unable to hold your driving licence, you could apply for a free bus pass, disabled persons railcard and look into Access to work.

epilepsy.org.uk/info/daily-...

For some people contacting other people who understand what they are experiencing can help. If you think this could help you, you may wish to see if we have a coffee and chat near to you¬ epilepsy.org.uk/near-me .

If we can be of any more help, please feel free to contact us again, either by email helpline@epilepsy.org.uk or phone the Epilepsy Action Helpline freephone 0808 800 5050. Our helpline is open Monday to Thursday 8.30am until 8.00pm, Friday 8.30am until 4.30pm and Saturday 10.00am until 4.00pm.

Regards

Diane

Epilepsy Action Helpline Team