Have been suffering for too long to remember, two cervical cancer scares, nerve pain in back, etc, they thought i had a hydrosaplinx when i had an ultrasound last Dec after a referral to gynae. Booked on the long waiting list for a routine lap op. Last week (on the Monday) I was in such severe pain that the morphine tabs given to me by the dr were not touching it, went to A and E, admitted. They did a newer u/s, queries of growth, queries not a cyst, hydrosaplinx etc, had ct scan next mornng, nil by mouth from the midnight as concerns i had a tumour/cancer!! Had ct scan, by 2.30pm i was in surgery. Scary time!! Woke up, found out briefly that they had initially found a loop of my bowel adhered and fused to my left ovary etc, said it was really thick and dense, ''properly stuck together''. After they removed adhesions they also found endometriosis spots on my peritoneum wall, left ovary and right ovary. They also found what they termed a 'pseudo peritoneal cyst, measuring over 6cm each and every way. Gosh, no wonder I was in pain. Discharged net day, was not told anything more. Looking at my copy of the discharge summary, they have offered me no follow up apt (which I aready knew about), have not asked my GP even to go through it with me, offer me advice on treatments etc. I dont know what grade it is. I know they found 'spots' of endo on p.wall area and left/right ovary (did not remove though i believe), and my understanding is the dense thick amount of adhesions contribute as part of endo? Also my ovary quote "was like a trapped spider in a massive web of the fibrous/adhesions, the pseudo peritoneal cyst being the issue that meant the ovary was trapped inside the adhesions, plus they foun a 5.5cm ovarian cyst bulky on left ovary, but left that alone too. I am guessing due to adhesions that the grading will be a 2 or 3, no idea though, wasnt told. Also, what do ido now? Im 33, 34 next week, no children yet, have early miscarried 3 times that i know of, still want to have a baby if i can. I don't even know if thats realistic or not. Should I be angry my gynae has dismissed me, not offered help, advice, follow up apt etc? Do I have the right to ask my GP for help n advice? What treatment can i ask for? What helps, what doesn't? I am embarrassed as it feels like the hospital were saying, just get on with it! I am lost, bewildered, angry, scared and have no idea what to do next. Anyone else had a similar experience, or can offer me some guidance on what i am entitled to, who i can go to etc? Sorry about the length. My first post/question, and my head is doing cartwheels! Thanks
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.