Hello all! New to the site today after a year of bad pain (years of intermittent pain) and still awaiting answers. Initially thought by Drs that pain was caused by kidney reflux I had as child, complicated by the finding of a kidney cyst which apparently would not be causing my pain. As a result have been discharged by Urologist who thinks I have endo and today am due to see a GP - a male! I have never met before, in bid to get first available appointment, to try and get referred to a gynaecologist.
I am dreading the thought and effort of trying to convince for a referral, whilst trying not to sound like a hypercondriact! Or google lover, but also getting what is needed...think I will spend half of it in tears!
Am feeling confused after two horrendous months of pain, then this month not being so bad. After someone asking me how do you know it's not period pains...like I'm looking forward to being diagnosed with endo or told by friends you don't look as bad as you made out! I feel like a paranoid, crazy person...so if anyone can answer following would be most grateful.
Initially my pain started off cystitis like, and I got what I would describe as bladder spasms, where I would go to the toilet and when finished it would continue to feel like I needed to push, which often resulted in period like pains even thought I did not have my period. The pain was very low pelvic initially and bladder region, but has developed to most times I'm go the toilet it feels like my bladder, bowel and uterus all want to push! Or if I'm on my period my bladder spasm pain or bowel pain (also have Ibs) are worse. Also have developed pain lower back in two horizontal stripes. I get pain in my left thigh too. The pain can be any time of cycle but definitely worse at ovulation, week before cycle and up to five days after cycle. My cycle has got shorter, periods aren't particularly heavy, but heavier and my breast are harder, more swollen and painful than normal...am not pregnant as every gp assumes! Does this sound like endo? Anyone else had similar? Also am always tired but not anaemic.
Also I'm worried as already on progestrogen only pill, as cannot have combined as my dad had a stroke at young age...anyone else had similar? What treatment did you get offered.
Painkillers don't seem to work for me, often have to take codeine or buscopan...heat is the best...any suggestions?
Most importantly how do you get through it?! I have such a stressful job and the thought of having to spend years of tests and worried not getting answers and risk to my fertility as time goes on.
I'm 29 and yet to have children. In a new relationship of nine months. I have no doubts he is the one and has been fantastic through all, but talking babies when we don't live together and not financially secure...don't want to scare him away!
Help!!!!
Sorry to waffle...have brain overload!
Thanks for reading xxx