Endometriosis sympons when periods have s... - Endometriosis UK

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Endometriosis sympons when periods have stopped?

Beaks84 profile image
8 Replies

Hi

I saw my consultant this week as the pill she had prescribed for me was not effective in relieving my symptoms. I also have an IUD coil and between the two of them, I don't have periods any more. My consultant said it was very unusual for me to still being experiencing endometriosis symptoms if I wasn't bleeding and I was wondering if anybody else has had a similiar experience to this?

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Beaks84
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8 Replies
Emmashead profile image
Emmashead

Hi ther im going to say this straight out, ur dr obviously doesn't no much about Endo then of course u can still have symptoms on a period or not! I had the coil in for 4 months and had to have it out as it made my symptoms worse, how long have u had it in? X

Beaks84 profile image
Beaks84 in reply to Emmashead

It did worry me a little, especially since she's an endo specialist and has been so good so far! I've had the coil in for 6 months and have been taking various different contraceptive pills as well for the last couple of months. I tried prostap before that but had terrible side effects and still some pain. I'm trying a different contraceptive pill now (with the coil still in) but my doctor has said if this doesn't help then there's nothing else they can do for me.

Eggcustard profile image
Eggcustard

Hi, I used to take a pill called cerazette and it stopped my bleeding but I still had cramps, pmt etc so I know what you mean!

Emmashead profile image
Emmashead

There is always something u can try nxt hun maybe a second opinion is needed?? Where do u live if u don't mind me asking? U can put it in a message if u like xx

Beaks84 profile image
Beaks84 in reply to Emmashead

I don't mind you asking! I live in Birmingham

Gemini4 profile image
Gemini4

I still experience pain even when I take my contraceptive pill back to back without a break. I usually find that when I do have a break to have a period, and then take the pill continuously again, I will still experience endo pain that I usually get on my period, even though I haven't had one. I think my body must sometimes think I should be on my period even though my pill stops me from having one.

foosey profile image
foosey

Hiya, I always get my endo pain after my period. I have bad period pains as well but the endo pain in completely different.

Beaks84 profile image
Beaks84

Thanks for your responses everyone, I'm really glad it's not just me - thought I was going a bit crazy!!

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