feel so low: i have a lot going on in my... - Endometriosis UK

Endometriosis UK

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feel so low

malibue profile image
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i have a lot going on in my life with my husband had an affair cuz he said it was because we couldnt have sex as i was in so much pain! so sad. now i have been told i have to have surgery to try and remove some of my endo, which im so scared as i had such a bad experience last time. They have also told me to stop the prostap injections and HRT. so i have and OMG hot flushes and sleepless nights are very difficult and putting me in a bad mood. feel so tired and fed up just want a normal uncomplicated life! would like to hear if anyone has suffered from hot sweats hot flushes etc!!

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malibue
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bophead profile image
bophead

Hi,

So sorry for you that your husband had an affair, thats terrible for you on top of everything else. Our men have to put up with so much and I constantly worry that my fiance might get fed up of it all, but that is no excuse for having an affair at all! I hope you have lots of support and hugs from your family and friends. I am on prostap but stopped taking HRT a few months ago and the same omg the hot sweats! like somebody has thrown a bucket of water over me! and restless nights and getting up and down to the loo are really getting me down amongst other things, I am actually just in the middle of writing a post about how I'm feeling and asking for some advice on some things regarding prostap and endo generally, I am also going to ask for advice on alternatives to HRT as I need something to help me or I'm going to go mad!!

Hope you feel better soon and your surgery goes well

Keep smiling and stay strong xx

Nicole_h25 profile image
Nicole_h25

Hi, I have also stopped taking my hrt, they want to try to see how things are without it, don't know about you guys but I have had a full hysterectomy and so really need to take something as I'm only 40and an early menopause is not good for the bones and heart etc, getting the balance right is so difficult, I am also up and down to the loo at night, can't sleep, hot flushes, irritable, grumpy, and very very tired. etc etc, I am so sorry that your husband had an affair, no excuse, I know it's difficult for them to understand how we feel and what we go through, I do get some comments from my husband, but I do say to him we need to talk about things so we know how we both feel , but I still don't think they get it , hope you are feeling better soon.

JulesUK profile image
JulesUK

Firstly, Im very sorry that this has happened to you and at a time when you need all the support you can get from your loved ones. I often think if it was men going through this horrible painful condition there would have been a cure years ago! I just wanted to add that the first time I went on Zoladex I didnt take so after some research I took sage capsules right from the start and did not suffer with hot flushes, just an idea for you to think about.

Catamenialwoman profile image
Catamenialwoman

Hi Malibue

As the women above have also said, I am sad to hear of your husband's behaviour. Especially at this point in your life. All I can say to you on this one is to surround yourself with people who care for you and respect you.

I also reckon JulesUK is correct! If this was a male health issue I suspect more money would be ploughed into research and a cure. I also suspect that they would be recognised as disabled too with regards to our benefit and health system!

I have a rare form of endo, it is on my lung. For the last four years or so I have been dodging a hysterectomy or medically induced menopause so I can empathise with you on this. In my case, surgery is really risky due to the state of my lungs.

I would suggest you chat with your GP about alternative ways of dealing with your endo such as Bio Identical Progesterone Cream, Agnus Castus (Chaste-berry), Mistletoe, and Milk Thistle. These all regulate your progesterone levels to varying degrees.

These have worked for me (I rotate the use of each in 6-9 month cycles) but what works for one woman may not for another. These approaches do not have an immediate effect, so you need to be patient. Two to three menstrual cycles is the norm for any difference to be noticed regarding hot flushes etc. Acupuncture is good for pain management and I think the NHS pay for this in some cases.

Sending you a big hug and I hope things look up for you.

Catamenialwoman

:)

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