I have Endometriosis will my daughter hav... - Endometriosis UK

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I have Endometriosis will my daughter have it too...

k2008 profile image
21 Replies

My daughter is 10 years old and in the next couple of year will be staring her period. I'm so scared that she will have to suffer the way I do... and not knowing if she will or will not have endometriosis...??? :(

Does anyone know if this is hereditary as no one in my family has this but me...?

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k2008 profile image
k2008
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21 Replies
limbiloo83 profile image
limbiloo83

hey love,

you must be going through a difficult time. I have found a few site for you to have a look through some are neither yes or no but hopefully these will help.

Speak to your gp or consultant next time you see him.

Hope this helps hun xx

Please remember to to read these with an open mind as they will contradict each other.

nhs.uk/Conditions/endometri...

freewebportland.com/article...

sciencedaily.com/releases/2...

genomemedicine.com/content/2/10/75

k2008 profile image
k2008 in reply tolimbiloo83

Thank you so much!

Have been reading the info in the links! :)

Chrissie66 profile image
Chrissie66

Hey K2008 :)

My mum doesn't have endometriosis, but I do....

On the other hand, my aunt had it, so did it come from her?

I've always been told that whilst there is a tendency for it to run in families, it's not technically hereditary. I completely understand why you are scared though, I wouldn't wish this on my worst enemy.

Try not to worry about it too much and just keep a quiet eye on her. It's going to be stressful enough when she starts her periods, she will pick up on any nerves you have about endometriosis.

Lots of love xxx

k2008 profile image
k2008 in reply toChrissie66

Thank you for your message! I really do hope she does not have it.

Noticed this weekend her body is changing, its had enough for young girls to go through the hormones and have this hanging over them too. I'm going to try and hold off for as long as I can in explaining "what's wrong with mummy..." but will be looking over her for any type of signs.

tinker241 profile image
tinker241

i can understand that you are worried about your daughter to have it too but try and not too but if you are worried go and find out about it and make sure it doesnt happen... or wait until your daughter first come on for period and tell her to tell you how she experience and then if it is that bad then take her to the GP straight and it cud happen to any age... i have Endo but none of my family got it but i am adopted and found that my real mother and Auntie have bad period but never Endo but it can be hereditary or not...

so i hope it didnt happen to your daughter and as you already know what it like eh??

make sure that your daughter tells you how she experience and she is not alone ok

hope it goes well for your daughter when she gets older

xx

k2008 profile image
k2008 in reply totinker241

Thank you!

I have a close relationship with my daughter and hope this will help me look out for any type of signs.

Tendo profile image
Tendo

No one in my family has had endo, and there's no research to either prove of disprove that it's hereditary.

I would tell your daughter what a normal period is like, and if she experiences anything different she should let you know.

I really hope that she doesn't get endo, but if she does, at least her Mum will understand her.

k2008 profile image
k2008 in reply toTendo

Thank you for your message, no one in my family has endo too and was so hard trying to explain it to my mum when i was dignosed.

Just hope that its not hereditary, but will have to be so strong for her to be supportive and not over protective in understanding if she does or dosen't have endo.

tinker241 profile image
tinker241 in reply tok2008

yes i can understand for the parents to know what it like... it would have been nice to have the mother to support us aint it? so i do hope you be ok and i think yours not a hereditary as your mum didnt havent Endo didnt she? so i do hope that your daughter dont have it and please dont panic alright x

Aquitaine profile image
Aquitaine

First of all, I hope your daughter doesn't have it, and I can understand why you'd be so concerned for her.

I think it's really important that she knows what is normal when her periods start. Unfortunately, when I was 12 I had very acute appendicitis, and while I was in horrible pain my Mother said 'don't worry, it's probably your period starting'. The result was that when my periods did start (and were horribly painful) I assumed it was completely normal, and so I went undiagnosed for a long time.

She may also be worrying about her periods starting if she's aware that they're very painful for you. Maybe it would help to make sure she feels comfortable talking about these things to you in case there are any problems that you should know about.

I'm glad for her that she has such an understanding Mum. Hope it all goes well for her.

k2008 profile image
k2008 in reply toAquitaine

Thank you for your message :)

Trying to remember what a normal period is... it’s hard. I thought mine were until two years ago when I started bleeding in between periods and the pain started. What confused me was that within two years I had stage 4 (severe endo) whereby I had to have one of my tubes removed and laser on a frozen pelvis.

I'm constantly trying to educate myself about my body with endo and the life style changes and hoping this will help me. Scared for my daughter tho so hoping she will be fine and has taken on my husbands side of the family.

medicmum profile image
medicmum

My mum has absolutely no problems with her periods, but all the women on my dad's side do, and I suspect a couple have endo. I am hoping that my daughter takes after her dad's side if the family rather than inheriting endo from me!

giljw profile image
giljw

I empathise with your worry but there does not seem to be anything conclusive out there as to whether it is heraditary. Bare in mind that once she starts her periods they will seem painful to her at first and most likely take a while to settle into a normal pattern.

None of my female relatives have endo, just me! I am concerned for my daughter. She is 17 next birthday and has had irregular periods since she started them at 14. They have been heavier, more painful and 'clotty' just lately too. She had glandular fever 4 months ago so that may have inteferred with everything but you cant help but worry. I have of course mentioned this to the doctor and it amazes me in this day that they still stay she's too young to have it! Hopefully they are right.

She has recently gone on the pill which I am actually glad about because of this! Hopefully this will make her periods more bearable and possibly stop any endo causing any real damage IF she were to have it.

Your daughter is still very young so try not to worry too much. At least we as sufferers and mums will recognise any symptoms and be proactive in helping them if we need to. Hopefully that will not be the case.

Best wishes

Gillw

No one in my family has endo at all! but i do

i have talked to girls though who have got endo from there mothers.

she is very younge when she gets older if you start to notice the same things you went through take her to the doctors etc although maybe she takes after her father

when she gets older you could put her on the pill for endo obv course!

i hope everything goes well for your daughter in her upcoming years i wouldn't wish endo on anyone.

rainey6373 profile image
rainey6373

I totally understand your worry. I have 2 daughters (which I have been blessed with) My Mum had endo, had to have a hysterectomy, she warned me about it, but when I started getting it checked out they said the scans showed nothing, and my bloods being out of kilter was down to mild neutropenia! That was 7 years ago! Last year the attempted a hysterectomy and discovered that I have what they call a frozen pelvis as it has spread everywhere and has fused my bowel, bladder etc to my uterus. If they continued I would have been at risk of ending up with a colostomy bag. After seeking a second opinion, nobody really wants to operate on me. I have been given the option of selecting which medication I would like to take to stop my periods until I reach the change, I am 39.

I hope you are ok, and everything will be fine for your daughter x

k2008 profile image
k2008 in reply torainey6373

39 years old is so young to have to wait for the change! Hope you find the right medication that suits you x

I was told I had a frozen pelvis last year and certain organs were stuck together but was lucky enough to have these separated. I was told that i was very lucky though as it was on my lower intestines but they didn't have to do a re-section. The frozen pelvic was bad and my tube and ovary was all curled up wrapped around a endo nodule (laser treatment was used). I had to have my other tube re-moved though as it was damaged with end. I'm 33 wanting more children but facing the reality of not having anymore.

Praying to god that my daughter takes after my husband's side of the family!

spice47 profile image
spice47

Hi, I worry about my daughters too, one has heavy periods and palpitations like I used to, and she has gone on to the pill to help her periods. I suppose if she stays on the pill as long as she can this could help, but i came off it at a 20 as I had chest pains and went on to develop endo more severely. I also had a difficult birth. At least now we have been diagnosed we can help others xx

sjdonkey profile image
sjdonkey

Hi there. I also have this concern. My daughter is 10 and is changing too. I'm very worried about her following in my footsteps as at 29 I had a hystetectomy on Monday. I am scared stiff that this could happen to her and that now I've had my hysterectomy I can't help her if it was ever needed. I hope your daughter will be fine as I am only one that has endo in my fam to.

Take it easy and I will keep everything crossed for all daughters out there xxx

k2008 profile image
k2008 in reply tosjdonkey

Hi, so sorry to hear that you had a hysterectomy at such a young age. I so hope your daughter doesn't have endo.

Hope you resting well and strying to postive on having some comfort from this now.

Take care! xx

limbiloo83 profile image
limbiloo83

I hope the links were of some use hun xx

I am the only woman in my family that has problems with my periods, I remember when I was younger I was told that I was being silly and my mum at first would say that I just need to take painkillers and I was still getting used to it, but then she began to see how bad it really was when I was going through packs and packs of sani pads and eating the painkillers like they were smarties. It was my mum that made go to the docs and kept making me go when I was told by them that it was normal and I just needed to deal with it. Even though it was 12-13yrs ago they had suggested endo but always "but your too young" until finally 11 yrs ago when I was working behind a bar I had a massive bleed which ended up me being rushed to hospital, they did a lapo and found not only did I have heavy periods but I had endo on my left tube and behind my womb.

These days all doctors are very savi about endo now, but before I remember having to explain to docs what it was as they hadnt herd of it... these were a&e doc docs as well!

I really hope that your daughter doesnt have this condition, I have two boys and cannot imagine what worry you are going through xxx

sarahmedsec profile image
sarahmedsec

I have endo and as far as I know am the only female in my family that has it. However, my daughter, now 13, has very painful periods and is already on treatment for them. So I am fearful for her.

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