adenomyosis

[Pinkhedgehog24]

what’s the likelihood I have adenomyosis as well as endometriosis? Would they have found this when they did the laparoscopy - I’m assuming not?

The specialist said yeah you might do but then didn’t really tell me anything else

sorry if that doesn’t make any sense

[Tangoandmax]

I have both, it can be quite common.

They don’t check for this during a lap normally. I had one 1st August, DIE removed and detaching of stuff. I’ve unfortunately continued to have significant lower back pain and unexplained bleeding.

They aren’t certain if it’s because I’m one of the 3/10 surgery doesn’t help or the adenomyosis. There are usually indicators on an ultrasound carried out by specialist which indicate it, that’s how I was provisionally diagnosed. I think the only way to actually know is testing after a hysterectomy x

[AllthatGlitters]

I have both. Endometriosis via a laparoscopy and my adenomyosis was diagnosed via MRI scan x

[Bakewey]

even after my total hysterectomy, the constant said the histology was unclear re adeno, however, he said it was v likely. It was never mentioned before surgery and I had to look up what it meant! It was not mentioned after my initial lap.

[Lofty1589]

My Adeno was diagnosed via MRI. However, when I had excision last Feb it was seen during my lap as well - my notes said “very obvious Adenomyosis”

[parleystopaz0e]

I’ve had both an MRI and specialist ultrasound show no adeno. But then after my endo excision the consultant said I likely have it because my uterus looked bulky during surgery.

Not sure what to believe, but from what I’ve heard it’s very common for the conditions to co-exist

[Jade2006]

I don’t get told I had it only found out when I read some notes .

The percentage can be quite high if you have endo x

[Jade2006 in reply to Jade2006]

Mine was diffuse x

[Jade2006 in reply to Jade2006]

Is 🙄

[Rainbow2468]

Hi i have both adenomyosis and endometriosis, my adenomyosis was discovered in 2017,via an internal ultrasound, so yes unfortunately yiu can have both. Sending you a safe hug 🤗

[Pinkhedgehog24]

thanks everyone for the replies it’s been really helpful and given me quite the insight.

As I’m still in a bit of pain after my lap do you think it would make sense to mention this to my consultant next time I see him?

X

[Chartolfrey]

My lap surgery in january showed severe endo i was refered for a mri which found endo, adeo, cysts fibroids and other bits.Currently waiting for hysterectomy now.

I would suggest ask for a mri

[16yearsofpainsofar]

I was diagnosed with adenomyosis via ultrasound because it was quite obvious. I'm too scared to have the lap so haven't been diagnosed with endometriosis (I suspect I have both).

[Potts22]

Hi there, I had a lap that found endo which didn't remove or alleviate any symptoms, a few months later I started getting new ones (terrible lower back pain and pelvic pain, bloating). Eventually, signs of adenomyosis came up on a scan, but that was my eighth scan! My GP said that it all depends on whether the person interpreting the scan is familiar with adenomyosis and many people aren't.

Hope that helps in some way. Yin yoga and a gluten free diet along with being on the pill have helped me manage my symptoms a bit.