Timeframe experiences ureter endo

[Darthradicool]

hi all

Doing a bit of fact finding to understand what others have been through

In short I’m having a stent put into my kidney on Christmas Eve due to endo on the ureter. Still waiting for a kidney function test though.

Im wondering if anyone who has had endo removed from the ureter could share their experience and roughly what were the timeframes/process like with the NHS?

I’m Just trying to understand what the journey looks like from here (appreciate everyone’s is different though!).

[Bethleah]

hi. I have kidney problems due to endo. A stent was putting in my left ureter. Unfortunately, it didn’t help and left me with six months of excruciating pain and peeing blood. The NHS did say it hasn’t worked for me. I have to have my kidneys checked and scans done every year just to keep an eye on the kidneys. When I had it put in there were two lengths of stent that they could use in their infinite wisdom bearing in mind that I am short they put the longer one in. They said it didn’t matter which one they used. Originally I was due to have surgery on the Endo at the same time. But they decided I was too complex to treat surgically for Endo. So I just had a stent instead. It was for six I think that was a standard amount of time. Hopefully having a stand will work better for you ever did for me.

[Darthradicool in reply to Bethleah]

That sounds so so horrible. Sorry you went through that and are still going through that