New here 👋🏻

[RedNeville]

Hi all,

Like many I'm sure, I'm waiting for my laparoscopy to confirm endo...7 painful years later 😅

As strange as it sounds, I'm really hoping that's what they find.. I've felt so gaslighted by so many health care professionals that I'm doubting myself 😖

I was just wondering if anyone has noticed a correlation between an endo flare up and other inflammation? For example when I get a bad flare up, my neck glands are also very swollen and painful, I seem more susceptible to coughs and colds and my appetite disappears, like I'm sick.

I can't find much to back this up online but I thought because it's an inflammatory disease, it makes sense?

💕✌🏻

[Hollymariaxox]

Hey! I am currently waiting for diagnosis after a hell of a year they have concluded it is very likely endometriosis.. I also get this, my feet get swollen and hot (so strange!) and I have noticed my joints, like my hands and wrists get bad( I'm only 29, but I would say it feels like arthritis) it's so crazy.. it is definitely in sync with flare-ups! I feel like it brings my overall health completely crashing down 😩

[RedNeville in reply to Hollymariaxox]

Hey, thanks for your reply 🙂

I'm sorry to hear you've been having a rough time with it all, I really hope you get your diagnosis (&treatment) soon 🤞🏻❤️‍🩹

It's crazy how many other "side effects" people seem to experience with it, I'm convinced it takes over your whole body.. don't even get me started on the mental health side of things 😅

Wow, now that you mention it, I also feel like an 80 year old woman riddled with arthritis at times too, never made the connection before 🤔

Sending you lots of hope and strength 🌼

[Hollymariaxox in reply to RedNeville]

Thanks and you ❤️🙏🏻It really is insane! The pain the last few months I am getting all in my lower back going down my bum and legs too.. I have never known anything like it!

My mental health has deteriorated so much I feel like I'm just a constant moan 😩 so awful.

Take care ♥️♥️

[BloomingMarvellous]

Try reading info available on @heal-endo . She's also got book of same name . You'll understand the mechanism then . Common relationship x

[East_end]

OMG, thank you so much for this post, I had concluded that I had two different issues going on. When I have a flare up I get extreme neck pain, radiating down to my shoulder, worst on the right side.

Convinced I have thoracic endo as well, to be honest, but getting anywhere other than my pelvis looked at is probably going to be a mission.

[RedNeville in reply to East_end]

Ugh that sounds horrible!😔 It's so hard to tell ailment from ailment when you're a woman 😅 I've always concluded that I had several things going on too, but we are very finely tuned machines 🤣 all of our systems are connected in one way or another, so I really wouldn't be surprised if the other inflammation that exists, is someway related to the endo.However, I would say that it's worth getting and ECG done when that happens if you haven't already, just to rule out anything cardiac. Xx

[East_end]

Actually Love you for this comment, it’s as though you’re several steps ahead.

That was my next plan of action, because my once regular heart rate is now irregular, the GP placed me on beta blockers because I was diagnosed with have Hyperthyroidism (Graves disease) 2 years prior, without any cardiology specialist input, and things have recently got worse.

Thank you for your comments, support and transparency with your own issues. Xxx

[RedNeville in reply to East_end]

You're so welcome! I really hope that you get to the root of your issues and can start to get some ease 🤞🏻GP's are all to quick to throw drugs at you without proper investigation.. it's actually really worrying! Keep pushing and pushing for those referrals, it's awful that we have to and are made to feel like a nuisance for doing so, but if we don't speak up for ourselves, who will? At the end of the day, we know our bodies best.

This forum is such a validating safe space ❤️

Stay strong and always here if you need a vent 🤣🌼 xx