Endometriosis biopsy

[Lunaloo123]

Finally received a call from my consultant’s secretary… apparently I shouldn’t still be in pain (knew it!) so I now have an appointment to see the consultant again in January.

I did receive a letter from the consultant with the biopsy results of the endo that they took out and I am so confused by the wording…

”the biopsy has come back as normal. This is not unusual that endometriosis is not always picked up in the sample, this does not mean that you do not have endometriosis”

When I had the surgery, the Doctor told me they took out a lot of endo and now the bit they have tested doesn’t have endometriosis in it? Am I going mad?

[Lofty1589]

When I had Endo excision in Feb, 2 samples were taken of Endo from my sidewalls (one each side) After biopsy, they came back as no Endo found. However, my consultant explained it to me that it had become fibrotic tissue so essentially the Endo had been there for so long and got so bad, it essentially became scarring.

Also, just because a biopsy didn’t see it, doesn’t mean you don’t have it. Just means it wasn’t in that sample

[Lunaloo123 in reply to Lofty1589]

Thank you so much for explaining this! A friend of mine had a fibroid as well. I didn’t realise that it could all be connected.

I hope things are better with you.

Thanks again x