A&e help: Just looking for some advice... - Endometriosis UK

Endometriosis UK

73,633 members53,582 posts

A&e help

Hollymariaxox profile image
7 Replies

Just looking for some advice please on if I attend a & e as it is looking very very likely today at some point ongoing pain is worsening and GP has provided me with naproxen codeine paracetamol and nothing is touching it I'm now being sick and not able to eat with the pain I just wondered if anyone has any advice on if I attend a&e how they can take me more seriously as I don't want to feel like I'm being fobbed off yet again . I am still awaiting diagnosis but I have been referred to the gynecological team at my local hospital for suspected endometriosis but waiting list Is months 😩😩Is there any advice on like what I can say to them to be investigated more or even just taking seriously if I attend 😩My mum has advocated for me my whole life until recently when I lost her. My anxiety is through the roof as I have never been alone on a medical journey without her by my side.

This is getting unbearable, any advice.

Thanks 🙌

Written by
Hollymariaxox profile image
Hollymariaxox
To view profiles and participate in discussions please or .
7 Replies
SunnyHappyDaisy profile image
SunnyHappyDaisy

HelloHollymariaxox

I am currently in the same position as you right now I desperately don't want to go to a&e but nothing is helping the pain.

I have had my fair share of A&E visits unfortunately.

I have found being very clear and concise about your symptoms in a kind way . Have a few bullet points jotted down e.g.

Explain you are awaiting a gynaecological referral ( so you don't know what the cause of your symptoms are yet)

When your symptoms started to get worse

How many days has your pain been increasing

You have tried G.P prescribed medications but they haven't been working and now you are vomiting and unable to eat.

Is your pain different to what it usually is.

I am so sorry you have lost your Mum , do you have anyone that could go with you?

🤗

Hollymariaxox profile image
Hollymariaxox in reply toSunnyHappyDaisy

Thanks for your reply your a saviour 🙌😩 them points are brilliant, I have been keeping a symptom journal anyway so will be sure to take it with me! I'm sorry you too have to experience such awful symptoms, I have literally dropped the kids this morning and had all good intentions of doing some studying as I'm doing open university, but after ten minutes the fatigue and pain made me need to lie down I have just got up and feel ten times worse 😩 definitely be heading hospital after partner is home. My pain is alot worse than usual so whatever is happening in there, there's definitely something, I also have increased urgency to wee like literally every half an hour, but urine dip shows no UTI as it always does of course.. this symptom is a fairly new one aswell as my leg pains and cramps ..but I worry if I tell the hospital of my new symptom they will just think urinay but I'm positive it's connected with these pains!

Thanks for your condolences, it's been a tough year, my mum even slept on the hospital ward floor with a blanket in February with me because she refused to leave me when this all first started 🥺 she was my rock. I do have my partner but he will have to stay with the kids at home, so just me riding solo gathering the strength to stay firm in the process 😩🙏🏻

Thanks again lovely xxx

SunnyHappyDaisy profile image
SunnyHappyDaisy in reply toHollymariaxox

You are very welcome

It is unbelievable hard to feel just so unwell and with no other option but to go to last place you want to be. It's so difficult living in chronic pain knowing when to get help, But hopefully you will receive some help and some compassionate care and the process will hopefully be as quick as it can be. When I am in A&E I tell myself that this day can't last forever, Much luck and strength to you x🤗 Keep us updated (only if you want to)

Mumpet11 profile image
Mumpet11 in reply toHollymariaxox

Hi Holly, make sure the hospital check for ovarian torsion. I was in hospital with horrendous pain and they treated me for a kidney infection for 4 days as they refused to do a CT scan and gynae could not see me that day.

When I eventually saw my consultant gynae the next week (I’ve had two endo surgeries) and it was a huge cyst and I had to have emergency surgery as they feared I had ovarian torsion and may lose my right ovary. Felt a million times better post surgery (and have both ovaries!). Not looking to scare you at all, but I am feeling very angry that this was missed. Sending you warm wishes and hope you feel much better soon.

Hollymariaxox profile image
Hollymariaxox in reply toMumpet11

Thanks s much for your advice! Well I attended today and I was there overall for 7 hours, literally wasted a day of my life! Bloods were all fine etc, she was trying to say my back pain can be mechanical 😂😩 whatever the hell that's meant to mean.. Andi basically had to beg this a&e junior doctor to please let me see gynae, I cried my eyes out to her.. to cut it short, the gynae women said they can't see me until my referral appointment and it can't be rushed as it's not a cancer pathway 🤔 and just keep taking the painkillers like I'm doing so.. I was like what the actual hell?? They literally do not care I have been so emotional, looking at private but it's just not doable! Even looked at their payment plans but my credit is awful so I doubt I would even be able to be accepted anyway 😩 still another four months just to be seen, and the god knows how long after that. Thanks so much for your words ❤️ sorry to hear of your bad experience too. Xx

Cia12 profile image
Cia12

So sorry to hear you're going through this especially after losing your Mum. I would consider going to Gynae privately if you can afford it if the pain is so bad. A+E is not an easy place to go with our symptoms! I find meditation helps the pain..headspace app is good. Sending good vibes for an easing of your pain soon. X

Palomino13 profile image
Palomino13

Hello Holly,

Your nearest local hospital should have an endometriosis nurse who is better qualified to understand you and help with pain. In the past I went to the department and asked for help/advice with out appointment no problem.

When I went to AanE I waited 7 hours only to be told you have been referred to Gyn and they can’t help. When my pain was severe, pain medication did not really work. Accupuncture did however. Maybe try some holistic therapy to calm the nervous system. You pain may be linked to spasms and contractions in uterus, pelvic floor muscles.

Don’t give up. Good luck x

Not what you're looking for?

You may also like...

Ignored and bullied in A&E. Refused laproscopy. Please help!

Hi everyone, I'm looking for advice on: 1. Being taken seriously in A&E 2. Getting a laproscopy to...
Hayulls profile image

A&E?

Has anyone ever gone to A&E before with pain? I'm at the end of my period so shouldn't be in this...
Clara12 profile image

Worth going to A&E?

hi all I am diagnosed endo and adenomyosis I had the op 3 years ago to remove endo and had a cyst...
Kitkat2020 profile image

Does A&E help?

Hi everyone after being told I will be having my operation in September to then be told definitely...
CourtneyD profile image

E-referral to gynaecologist

Hi everyone, I just received a letter from my GP with a note attached saying please find attached...
NJG_98 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.