Life and Womens Health

[Sparkles2000]

It’s really frustrating reading all of the posts containing miss information and poor diagnosis for dozens of women. Myself I’m 45 had issues with periods .. pain.. and it’s been for 20 years. Never thought I’d be a mum but I was after a number of attempts and a tragic 38 weeks still birth.. but really now living with endo.. fibroids.. and adeno makes me realise how many times my symptoms have been dismissed. Usually as mental health .. anxiety and just a bit of pain. I thought I was weak and couldn’t take pain.. but it’s actually because I’m strong .. that I’ve lived like that since a teenager…until now.. but it’s like a symptom swap shop.. by injecting yourself with hormones.. you will be in less pain.. but actually .. it’s just weeks of headaches.. urine infections .. rashes .. 17 days on your period and .. lastly feeling like a hot water bottle. I think women’s health needs a bit more focus .. I have seen a few good websites .. but when you think all that resource that should be available.. and we are on here all helping meet.. treat diagnose and actual support each other.. its an agenda that needs pushing but the system is so broken it’s on deaf ears ..

[Endofitall]

Absolutely. There is a real problem with listening to women. My symptoms of ectopic rupture were dismissed because I didn’t present with severe pain (when you’ve lived with endo your scale of 0-10 of pain is very different to others) and pain was in my shoulder near neck not shoulder tip as they kept insisting it would be.

It took me 24 years to really be taken seriously with endometriosis due to normal scans and then had to pay for lap privately.

[Sparkles2000 in reply to Endofitall]

Through reading all of the threads it makes me realise .. there’s a need to get a voice into the NHS system. Because all of us women’s on here are collectively gathering data telling them clearly side effects.. symptoms.. alternative treatments and most of all what support is actually needed. It’s really valuable.