Start of my Endo diagnosis journey

[Pastaislife93]

hi!

I have an appointment with a gyne consultant in July (hopefully), im documenting all my symptoms from January 24 till the appointment to take with me. I track my periods and am prescribed painkillers by the GP, internal and external scans are clear.

Any advice for the appointment? What should I ask for? What kind of questions do they ask?

I keep gaslighting myself that I don’t have it because I don’t get horrendous pain every month like I used to age 12-16. I’m 30 now and I came off the pill 2.5 years ago, I have a whole load of symptoms and an endo specialist nurse I spoke to for work agreed that it sounds like I have it. Any advice would be greatly appreciated! 😀

[Tangoandmax]

Hi,

The diary is the best way to highlight your symptoms. Which you are doing so that’s great.

Just make sure that any further scans you have are reviewed by an individual with a special vinterest in endo. General sonographers don’t know what they’re looking for/aren’t trained well enough to spot. From my journey, I’ve leaned unless it’s a endo specialist/someone with an interest for the most part they find nothing unless you have an endometrioma (cyst). Same goes for any MRI scans.

Don’t gaslight yourself, they do enough of that without you doing it to yourself. You know your body/symptoms, don’t let them fob you off, I trusted everything they were saying since they’re the professionals and it was the biggest mistake which has left me in a terrible state.

Good luck with the appointment!