Endometriosis specialist

[En89]

Hello everyone So I've unfortunately had to stop decapeptyl due to concerns physically and most importantly mentally.. so back to square one. I'm booked into see a endometriosis specialist at Bath Royal United I can't remember his name I don't suppose anyone knows his name? I think he is the only specialist there?! If you had experience with this specialist personally how was it?

Also my next treatment they want to do is mirena coil I'm so nervous something I've done everything to avoid but I can't carry on like this I'm constantly throwing up and in so so much pain it's unbearable. They are going to put me under luckily as it's very clear from examinations I would not be able to tolerate it awake.

[1Poppy1234]

I have had the mirena in for over ten years four in total and the consultant I saw wants to take it out and I only just had it in in October a new one. I'm just about to start the mini pill to help after finishing decapeptyl jabs and they don't want me to have another round. Not sure if that helps you any. The mini pill is supposed to help. Take care and I hope you get some relief. X

[En89 in reply to 1Poppy1234]

I'm only aloud to take progesterone pill only. I'm on it now been on it for years but nothings helped. Very skeptical about this coil but as much as I'm scared I don't want to be seen as not trying and accepting the help

[1Poppy1234 in reply to En89]

I question the mirena as it has oestrogen in it and that's what causes my migraines. So I can understand your concern. If you talk to them and say there are a lot of mixed opinions on the coil and your reluctant to try it. They should understand your worries.

[Lindle in reply to 1Poppy1234]

The mirena doesn't contain oestrogen - it's a progestin (Levonorgestrel).

[1Poppy1234 in reply to Lindle]

Thank you for clarifying that the Dr told me it had different hormones in and that the level of oestrogen wouldn't effect my migraines well obviously not as it doesn't have it in. I believed what they told me how stupid. Thank you again.

[Lindle in reply to 1Poppy1234]

It's not at all stupid as we should be able to trust these 'professionals'. It's pretty shocking though as this should be basic stuff for a gynaecologist...

[Lindle]

Just be aware that the mirena or any medical treatment only aims to control symptoms, not endo itself, so there is a risk of progression while symptoms are masked. I assume you don't have a diagnosis yet so this is a risky approach.

Be sure the 'specialist' does have a special interest in endo which means additional training. The first step in diagnosis is a scan but the sonographers in general gynae departments usually only have basic skills so only look at the uterus and ovaries. Endo is usually deep behind the uterus and needs more expert skills to find. Be sure he does a thorough physical exam, including an internal to feel for any nodules and say that you want an ultrasound done by someone with skills beyond looking at just the reproductive organs. It is important that they know how to assess the 'sliding sign' which tells whether the uterus and bowel are stuck together. If you click my profile you'll find a post on the importance of the sliding sign. Be sure to mention it.

[En89 in reply to Lindle]

I do have a official diagnosis of endometriosis and adenomyosis and pcos yes. Got the official diagnosis last July however been suffering over 10 years x