coming off all hormones

[Kieraface]

hi warriors.

I’ve bled for 73 days now since my surgery on 6th October. I’ve had options from my surgeon and they would effect fertility which I don’t want to do so we discussed coming off all contraception and using tranexemic acid on heavier days of my natural cycle.

How many of you have used this/done this method?

Currently I have no quality of life as I’ve bled for almost 3/4 of the year. I’m exhausted and need a break. Severely anaemic now too so if this works for people I’d be tempted to try it tbh

Any experiences or insight would be great!

Thanks 💛

[OlgaSz]

I am so sorry to hear what you had to endure...

I was on a small pill for 6 months and bled for 4 months straight. I then plainly refused to take any more pills. My gynae disapproved, by couldn't take them any longer. I had all the other side effects as well.

I had my surgery 2 months after I stopped taking pills during which I refused Mirena (the same hormones as in the pills). I am now taking only painkillers when needed. Some days are better, some are worse, but I wouldn't come back to taking pills. I haven't been offered any other drugs as I am allergic to almost everything we tried so far, so can't say about tranexemic acid, but my quality of life improved dramatically.

[Kieraface in reply to OlgaSz]

That’s great! So glad to hear your quality of life has improved! Thank you for sharing your experience 💛

[BloomingMarvellous]

Hi Kieraface

I’d suggest you look for support to these links @heal-endo ( Katie Edmonds - she also has a book of the same title) @leah.brueg who focuses on supporting cycles ( pick and choose but she knows her stuff) and look at her podcast number 57/56 with Dr Angie Muller on pelvic core health - an hours talk which is really helpful! She can be found at @corerecoverypt which is worth A real pick through.

[Loriiim]

Hi, I was on tranexamic acid for about 8 years whilst I had the copper coil fitted, before my endo diagnosis. It did help my bleeding & pain a lot. I was still bleeding for about 14 days each month but was no longer flooding/leaking - it was a lot lighter. It didn't stop all my pain, but it did mean painkillers were much more effective & stopped keeping me up all night. I'd recommend giving it a go & see how you get on. I've just also stopped all contraception due to side effects/intolerance & currently on the waiting list for a hysterectomy, but will be asking to go back on tranexamic acid if things get bad - I'm just waiting to see how my periods are with nothing. Good luck & hope things improve 🤞