Adenomyosis diagnosed : So last Friday it... - Endometriosis UK

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Adenomyosis diagnosed

En89 profile image
En89
4 Replies

So last Friday it was confirmed I have adenomyosis tbh I was kind of in denial thinking nothing would show....

But it did.... I didn't feel any emotion at the time when I was told I was going to be put into menopause. And my chances of ever conciving was very low... considering endo, adenomyosis and pcos. But never say never...

I walked out the room to go get my injections to see baby's and burst into tears like all emotions hit me.

6 days post app and starting my injections I feel so low and like a failure I'm angry at my body and genuinely feel I'm grieving it's so strange. I don't feel myself I feel like I'm so disconnected I don't know if this is a symptom of the menopause I don't know what to expect not really got anyone to talk to about it.

Don't actually know what point of this is other than to offload I'm sorry

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En89 profile image
En89
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4 Replies
AllthatGlitters profile image
AllthatGlitters

Hello I have felt exactly the way you have, I have adeno and endo. It takes a while to sink in. You often think why is my body failing me. Why can’t it be a normal body. I have also been on injections (decepeptyl), 3 operations, don’t have kids, told it would be very hard for me anyway so why would I put myself through that.

Please PM if you need a chat x

hazzahill12 profile image
hazzahill12

I’m so sorry your feeling this way and to be told all that in one go it takes time to digest. I have adeno and endo also. The injections can definitely make you feel that way but it may be that and just everything. You can get add back HRT if the symptoms are bad. Are you wanting to have children? X

Sorry to read how you’re feeling. If you are wanting children, please don’t lose hope. You have age on your side and although it may be tough it’s absolutely possible, it really is. People do fall pregnant naturally with endo and adeno and they also do through IVF. Wishing you all the best x

Cocoacupid profile image
Cocoacupid

you are by all means not a failure at all it’s hard when you are so young. I suppose for me being told in my late thirties is not as young and I can understand more. I do feel for you as my sister and brother have children I don’t I have furry babies they bring me joy. When my friends are having babies in a sense I do feel grieve in a way. But I know deep down I wouldn’t be able to cope with a child as am suspected to have autism . Chin up hun I know it’s hard and devastating have you thought about adoption or something like that in the future. I have learnt as I have gotten older you don’t have to birth a child to be a mother there are so many people who shouldn’t have children and do . There are other options hun I know it’s crap I have learnt also to try and see positives in the negative times that way I just take it day by day and try and think of all the positive things in life . It is hard though as endo or women things don’t just effect the physical it affects everything in life your mental health as well and spiritual health some people don’t think about that at all they just treat the physical issues not our wellbeing. Maybe also see gp to see if you can get talking therapy to get on top of how you are feeling how your emotions are and check in on you. The ladies on here are all rooting for you and we are hear for you so if ever you need a chat talk to me or any one else we are all here for you. Take care hunny xxx

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