hopelessness and acceptance in the lack of control

[Prowarrior1]

it’s so lonely confusing, frustrating dabilating. Helpless for the upcoming inevitably knowing I can’t do a thing to avoid relive prevent it or even make it somewhat manageable mentally and physically for half the month half the year half your life

[Moon_maiden]

Hi

How are you feeling today?

Sorry it’s getting too much, it does this to you at times.

[Prowarrior1 in reply to Moon_maiden]

Thank you for replying. confusions with my thought process ( anxiety the first week, crippling pain into the second is where I am at present I’m begging my cycle to come, to start the rebalancing process. I hate my thoughts feeling emotionally unbalanced. Thank you asking how I feel I feel desperate for relief I wish thou around vmme could truly understand my condition, truly. But your reply is helping me to use this resource be pro actives for self. But I’m not myself

[Moon_maiden in reply to Prowarrior1]

Hi

This disease is awful, sorry you aren’t getting the support. Most illness you can’t see but with this one there’s too little known. They know from Edinburgh research the cells are and act in a similar way to cancer, maybe that would help them to understand. It’s also in the top twenty NHS most painful conditions. Don’t feel bad because you have a disease you couldn’t prevent.

Likely more hormones than anxiety but have the same symptoms, unfortunately drs say anxiety which makes me so cross as they know better. You can get through this 🙂 I know how bad it can get

Are you getting help with decent pain relief? I hope your GP is supporting you.

[AllthatGlitters]

Hello I feel your pain. Please reach out to us all for a chat, we know how it feels x

[Prowarrior1]

thank you to for your reply. I hate being a wino! I become my own opposite In every way. All I dislike demotivated, deflated, from trying to overcome the resilience mentality and the exhaustion and pains physically still hard the expectance to internalise specially when mistaken for depression, subjected to systemic discrimination, especially when your so desperate eg being at hospital, doubled over in pain, on the bus outside to see ppl get out there is the hardest part. If that makes any sense