Back to the start again… please send advice

[PBGV24]

hello everybody.

I have posed here a couple of times. I have the “typical” endo symptoms. Heavy/painful periods, pain on period passing stool/urine. Ovulation pain.

Was put on the Depo for 10 years and just forgotten about. So had no periods = no pain. But then I started getting cramping pain, especially worse when my Depo was running out and some spotting.

Got to see a Gynae consultant and was booked for diagnostic lap, I was happy I had been listened to. But then I got the call they didn’t want to go ahead anymore. As my BMI was “too high” and they didn’t want to do anything invasive. I felt broke.

So instead they popped a coil in, instead of the Depo. I can’t lie I haven’t had any pain for about 6 months or spotting. The consultant said if the coil helps your symptoms it’s probably endo.

(they refuse to believe it’s gynea cause of my weight. And I’m not even that heavy!)

however last night I felt so uncomfortable. I had pressure and cramping in my uterus area. When I woke up this morning going to the toilet was so painful.

I’m not sure what’s going on anymore or what to do. Is my pain coming back? I feel the coil has helped over the past 6 months but now I’m worried I’m going to get this pain again.

Any help - Any suggestions?

[Avourneen]

If they didnt want to do anything invasisve they could easily offer you an MRI. That would probably show up where the endo is and you could then look into getting an op. The coil/pop pill help but they just mask the endo and it can still be growing. If I were you I'd go back and try for a scan.

[Vee2508]

I would personally recommend going back to the gynaecologist and asking if they can refer you for an MRI instead if they don’t want to go down the invasive route, they didn’t want to do an invasive procedure on me either so the gynaecologist had me go in for an MRI and they found endo tissue so I was started on a trial treatment to see if it’d work or not. There are always other options for them, I think it’s ridiculous that they’re always quick to throw weight around just so that they don’t have to do their job, it’s just a shot in the dark for them to put a coil in and hope that it’d work without finding out what the problem was first. You’ll have to be really firm with them and tell them that the coil only worked temporarily and now the pain has come back so that they can take action. I wish you all the best, you deserve a proper diagnosis and treatment like everyone else ❤️

[PBGV24 in reply to Vee2508]

Just feels like it will be another long wait again. I’ll have to go back to the GP to get referred onto gynea again…

I ended up going home from work the other day the pain I had was so intense I could barely walk

[Vee2508 in reply to PBGV24]

I’m really sorry to hear that It’s such a massive shame that these conditions aren’t taken as seriously as others, it’s absolutely ridiculous how long you have to wait just to see a specialist for a consultation. I waited three months to see mine after originally being referred by my gp and then I had to wait six months for an MRI and then another month just to see him again to discuss the results (which he knew was endometriosis from my ultrasound) it felt like such a wasteful nine months. I hope you’re feeling a lot better now and that that pain has subsided 💜