Endometriosis and Crohn's disease

[Hermi_t]

Hello Endo Warriors.

I was wondering if anyone here has been diagnosed with Crohn's disease as well as Endo?

I have had multiple bouts of ileitis (inflammation of the last part of the intestines). Colonoscopy/endoscopy showed no signs of Crohn's as well as other tests. However my gastroenterologist sees no other explanation for the ileitis other than Crohn's!

I'm due to have excision surgery for Endo (first lap) in a few weeks and then my GI is planning on putting me on immunosuppressants to treat the Crohn's.

Will they be able to confirm or rule out Crohn's during the laparoscopy? Or won't it show from the outside of the intestines? I'm sort of "hoping" that they'll find Endo in the same place as the inflammation, that way this whole Crohn's thing isn't actually a thing!

Has anyone else had this kind of confusion?

Thank you 😊

[Coral07]

hi I’m glad I come across your post I’ve been going through the same dilemma, except my GP won’t even answer my calls never mind send me for tests I’ve had endo since I was 11 had multiple surgeries with all included my bowels🥲 but the past 2 months have been the worse they have ever been to the point I’m I’ll everything I eat just doesn’t agree with me and the pain I get in bowel is just different to endo I also have chrons run in my family. I’m almost positive I have it but no one will listen even when I’ve gone through complaint services, hope you get the answers you need soon and I’d be interested in keeping up with your story as it might help me 🫶🏼

[Starry1977]

My mum had endometriosis and had everything removed in her 30s . She was diagnosed with chrohns at 53. ( she thinks there's a connection as her bowel was effected by endometriosis) I've also read people with endo are more likely to get chrohns. Obviously not sure how true it is. But her symptoms were lots of pain and at her worse she was diorreahing several times a day. Nothing stayed in her.

[Emmarosee]

Yesss I found the endo first and got it operated on out but then a few years later they found I got crohns, the way I found out was i was bleeding from my bowel and they did a colonoscopy.