Feel worse after surgery

[Njm22]

5 weeks post surgery for removal of endometriosis. Had superficial endometriosis in addition to more severe on my rectum and over my bladder. I feel like I am deteriorating further by each day and feel worse each day I wake up. I definitely feel worse than before I had my operation. The tiredness is unreal where I constantly yawn and fall asleep so quickly if sat down on the sofa. I wake up evermore g feeling like I have had no sleep despite having 8 hours rest. I have diarrhoea almost every day and some times more than once. I feel sick at times after eating and get occasional stomach pains. Sometimes it feels like period pain but I am not on or coming on my period. When do you start to feel better as I have had enough . I am not sure how I am going to cope going back to work tomorrow when it is a struggle and effort to keep awake during the day I have my follow up with the surgeon next week.

[Circe3]

Hi there,

So sorry you are feeling like this after surgery!

I have not had surgery but I also have Superficial Endometriosis and contemplating surgery as I was told at a gynaecological department at the NHS it doesn’t help the pain. However one lady on here says it really helped her. It’s probably dependant in where it is, I also feel it in the rectal area.

I feel someone very specialist needs to feel with this.

Do you know what method they used to remove? Wide excision of ablation? I have read and researched Excision is better as removes all of it.

I really hope you can heal and feel better and get some answers from your surgeon.

[TogetherWeAreStrong Moderator Endometriosis UK]

Hi Njm22 and welcome to team of fellow endo Warriors. I am so sorry to learn of how your have been deteriorating post surgery. We all go through it with it to alleviate our symptoms. From what you have explained I am not suprised you have had enough and then with the extra pressure of work.

I will not be instrusive but I hope you sorted a mutually agreeable arrangement with your employer.

I am glad your follow up appoitment is very near now. In the meantime, do not suffer in silence or hesitate to call 111, regardless of when the follow up appointment it.

We have a great Webinar which discusses getting the most out of your appointments:

endometriosis-uk.org/webinars

You could lie down on your sofa and listen to it on your phone (Getting the most out of your Gynaecology Appointments with Joanne Hanley).

Please reach out, as we are all here for each other. There's also loads of help and advice on:

endometriosis-uk.org/

Stay strong 💚