endo hell: Hi all, I have endo..pcos... - Endometriosis UK

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endo hell

ocke2030 profile image
3 Replies

Hi all,

I have endo..pcos/fibroids/ademyosis does anyone else all four?

I have had 3 /.4 since 2006 and battle with my then gp to ref me to a gynae as most of us know they dont care.

only have 7 to 10 days that I am not tired so fraustrating so a vicious circle . my uterus and colon stuck together my bowel is on a u bend yes like the one thats under the sink!

curently waiting foe gynae and colorectal surgeons to give me a date to sort me out again

? hysterectomy kinda done with the endo situ now .

Any thoughts.would be great

stay strong endowarriors

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ocke2030
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3 Replies
Chocoholic168 profile image
Chocoholic168

I am sorry to hear your situation and battle with the docs, i am also having a battle with the docs. It would not surprise me if i have pcos and endo due to my symptoms. My mum had fibroids so who knows what is going on in my body. Im fighting to get to the bottom of it. All i can say is keep fighting and ensure you get the care you deserve and need the docs /gyne should follow NICE guidelines which thanks to this group i know about so do review them you can find them on the endo uk website - i hope you get your date soon , dont give up x

ocke2030 profile image
ocke2030 in reply to Chocoholic168

aww thanks theses things are sent to try is

Tomims profile image
Tomims

Hello, I can feel your pain, I have numerous of all those types, every part in eco look black, all the doctors see that the surgery is the only option. My mom refuses this option because she's afraid, I couldn't let her understand how much pain I have since I was 13 ys. It was each month, now period comes each 15 days, the pain is everyday, can't live my life and I always hate being a woman and suffer. But when I see some women they're fine with no pain. I wish if I could take off my uterus years ago in my teenage. It's useless for me, just pain my whole life. I'm sorry I don't want you to feel more bad, but we have nothing to do only patient, and don't wait the support from people who didn't suffer like you, even the doctors don't take it seriously, while it's kill you emotionally and physically.may God helps all of us.

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