injections

[Sazle]

morning, having seen my consultant, she has said that prior to an operation she wants to give me injections, to put me into early menopause, this is to ease the pain while waiting for an operation. Has anyone else been through this? She didn’t tell me the name of the injections as I’m going to have some scans first and then see her again. I’m wondering if anyone else has been through this and what I can expect, I understand though everyone’s body reacts differently. X x

[Cactus80]

HI Sazle,

I had decapeptyl injections for 7 months last year prior to my surgery. There was a definite reduction in pain, not completely gone but much better. I was prescribed hrt patches which helped alot. I felt a bit weird to start with while my hormones were shutting off t settled. I had spotting for about 8 weeks towards the end of the 7 months, unsure why but suspected my smallish endometrioma was slowing draining as it was gone by the time surgery came round. Overall my experience was good however not the case for everyone.

Hope this helps 😘

[Sazle in reply to Cactus80]

Hi, thank you very much. I guess it’s worth trying and seeing how it works for me 👍 x

[TheUntamed]

I had Zoladex and it helped a lot with the pain. Menopause side effects were a bit annoying though.

[Sazle in reply to TheUntamed]

I’m worried about side effects but I think I need to go on injections as the pain is really bad 😞 x

[TheUntamed in reply to Sazle]

it takes a couple of months to work, but I was amazed at how good I felt

[CupcakeL]

I’m on decapeptyl had my 14th injection this week and it’s been a game changer & meant the wait for surgery hasn’t bothered me.

I went onto Tibolone HRT after 6 months and that sorted the insomnia & blurred vision my pain has gone, haven’t had a period or bleeding since the injection. I have given up drinking alcohol as it brings on crazy hot sweats but that could just be me.

Another thing I’ve found is I know that all my symptoms are my endo - my journey has been one where I’ve been made to think I’m crazy and it’s in my head even after a diagnosis 11 years ago I was still just fobbed off but these injections have taken it all away so now I know its not in my head 😊

Everyone is different but I’d recommend trying them. Best of luck

[Sazle in reply to CupcakeL]

Thank you so much. I still have people say it’s in my head and I’ve had two operations already in the past and been diagnosed. How often do you have the injections? Symptoms are awful with endometriosis aren’t they….. I have days I can’t think, eyes and head hurt, body aches the list is endless x

[CupcakeL in reply to Sazle]

I’m sorry you’ve had a similar experience of people making you feel like it’s in your head, it really is horrible!

I have an injection every 4 weeks, the nurse at my doctors surgery does it (the first one was at the hospital).

From reading your other replies about the tiredness I never realized it was endo related until I started these injections, my energy levels are so much better now Xx

[Em_46]

Hi

I'm on zoladex injections which have completely stopped my periods, my consultant also put me on HRT as well to counteract the side effects of going through an early menopause which has been brilliant.

I've been having injections now since Dec 2019. Unfortunately I was due to have the operation back in 2020 and because of covid is just hasn't happened. Not entirely sure how long I can be on the injections and HRT for but it's been nice having a break from periods and the pain.

Hope this has helped?

Emma

[Sazle in reply to Em_46]

Yes thank you, this has helped. It sounds scary putting your body into early menopause but it seems a lot of people have this done. I hope you get your operation soon , fingers crossed 🤞 x

[atealdeer]

I've been on Decapeptyl and taking Tibolone alongside since early this year. I was due surgery next week but that's just been pushed back two months. The first month was extremely hard. I'd been warned my symptoms would probably be worse than ever, so I was prepared. Second month was better. Third I had my life back. It's been amazing for me. I happened to have my first jab on my first day of spotting, that stopped completely that day and then I had my period four days later for two or three days. I've never bled since and it shut down most of the other symptoms, though I feel them coming back a bit now, but I think some of those could be long term damage from endometriosis rather than the jab not working properly (e.g. my bladder is shot).

As CupcakeL said she experienced, there has been so much relief to know that this essentially has confirmed this is not in my head.

I really wasn't going to have the Decapeptyl, I am diabetic and one of the possible side effects is hyperglycaemia, and temporary diabetes in those taking it. Of course I did have this side effect but my diabetes nurse dealt with it with both an adjustment in advance, extra moitoring and then a further adjustment when I needed it. So read the side effects carefully and if you already have another chronic condition, talk to your usual medic about it before you have the first jab. It's been totally worth it for me.

[Sazle in reply to atealdeer]

Thank you so much for this. I hope your operation goes well. I get a little fed up of people saying it’s all in my head and people asking why am I tired all the time x

[Bassem1979]

hi

I was on Zoladex prescribed 6 but only had 3… my symptoms were great no bleeding, no pain, no bowel issues but my bones hurt where I struggled to walk. My hair fell out really bad it’s so thin now (yes vain I know but my self esteem was shot) my moods where bad and I had bad insomnia.

I was not given HRT, even if I was offered I would have been scared to take it.

Lady’s hate going through natural menopause and these injections put us through it for how ever long it takes for the operation.

As I said I stopped after 3, and am paying for it with my Endo and fibroid symptoms and still no date for the operation.

I will be honest don’t know how long I can cope with these symptoms but I really don’t want to go back on the injections.

Am glad it’s worked for so many people and am sure it will for u too.