Ureterolysis : Hi there, I had my first... - Endometriosis UK

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Ureterolysis

isabellala profile image
4 Replies

Hi there,

I had my first operative laparoscopy recently and have obtained a copy of my surgical notes. As well as adhesiolysis and excision of endometriosis (in various forms, e.g., helium plasma coagulation and left sidewall resection), I saw this:

Ureterolysis with freeing of ureter for retroperitoneal fibrosis

Is retroperitoneal fibrosis a form of endometriosis?

Did anybody have this done and know what it means?

My follow up is in October but I’m just curious.

Thank you!

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isabellala profile image
isabellala
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bluebug profile image
bluebug

Retroperitoneal fibrosis is a rare inflammatory disorder in which abnormal formation of fiber-like tissue (fibrosis) occurs behind the membrane that lines the cavity of the abdomen (peritoneum). This abnormal tissue growth often spreads to affect the tubes that carry urine from the kidney to the bladder (ureters).

Source - rarediseases.org/rare-disea....

isabellala profile image
isabellala in reply to bluebug

Thank you so much Bluebug :)

Lindle profile image
Lindle

Yes this is deep infiltrating endometriosis (one of the three forms of endo) in which the chronic inflammatory process of endo causes the build-up and spread of abnormal scar tissue that replaces normal tissue. It is beneath the pelvic lining (peritoneum) hence the term 'retroperitoneal'. It will have been rectovaginal endo and they dissect what is called the pararectal space to access it to do excision, which involves freeing the ureters (ureterolysis) which become encased in the fibrosis.

This is severe endo and presumably was done in a specialist endo centre.

isabellala profile image
isabellala in reply to Lindle

Wow, thank you so much Lindle. You are so knowledgeable!

I was treated at a BSGE centre, indeed. And I feel very grateful after a very long journey to get there.

I really appreciate your reply. This is so useful to know ahead of my follow up. I look forward to getting some more information in October.

Take care x

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