Anyone has really bad severe endometriosis but their tubes are open

[Bdgjdjd]

Anyone has really bad severe endometriosis but their tubes are open

I have endometriosis on all of my organs rectum viganal bowel POD ovaries and bledder possible stomach now

The only area I don’t know is my tubes I cannot have test to chech if they are open or not untile next year

So i wanna know is there anyone has really bad severe endometriosis but her tubes are open ?

[Hannahpicks]

Hi, yes I have severe Endo in multiple areas but I had my tubes checked in my recent laparoscopy (with endon excision as well) and they were good/open/clear. So that’s one less thing to worry about! Hopefully you might have the same x

[Bdgjdjd in reply to Hannahpicks]

Did you have cysts on ovaries?

[Hannahpicks in reply to Bdgjdjd]

I have Poly Cystic ovaries... x

[Bdgjdjd in reply to Hannahpicks]

No i mean chocolate cysts ?

[Hannahpicks in reply to Bdgjdjd]

Nope, do you?

[Bdgjdjd in reply to Hannahpicks]

Yes i have them and my doctor told me this kind of cysts means stage 4

[Hannahpicks in reply to Bdgjdjd]

Yep it does, but I just have severe Endo everywhere else.

[Minchoo]

I have choc cysts (apparently). Had affected my tubes too. You need to have a 3D hycosy it costs 450/500 privately. Or ask for a MRI

[Bdgjdjd in reply to Minchoo]

What is the different between HyCoSy and hsg ?

[Minchoo in reply to Bdgjdjd]

Apparently it’s more reliable in terms of determining if tubes are open and less painful. 3D hycosy is the one I had done.

[Drew9]

Hi I had my lap done 6 weeks ago. Severe stage 4 endometriosis found on uterus, bladder, bowel with adehesions. Kissing ovaries and chocolate cysts on both which were removed/drained. I had the dye test on my tubes and miraculously they were both clear! Obviously the advice for me has been to try for a baby ASAP as the tubes could become blocked at some point but thought I’d respond to your question to let you know that it is possible to have severe endo and clear tubes. I would say though that my surgeon was surprised as he expected the tubes to be affected in some way. If you have any questions let me know. Good luck!

[Bdgjdjd in reply to Drew9]

Thanks you so much for your response 🌷

It is really good to hear that severe endometriosis doesn’t always means blocked tubes ❤️❤️❤️

[Drew9]

You’re welcome. The thing about endo is that it impacts everyone differently so all our bodies will be different stay positive and definitely push for the dye test when you can x

[Lottie80]

Stage 4 here. Severe rectal disease. Chocolate cysts on both ovaries. However tubes open. Had had one baby so far. Good luck x

[Bdgjdjd in reply to Lottie80]

Congrats 🎊🎈😍 this really gives us some hope

But if you don’t mind I have some questions

Did it take too long to get pregnant?

Did you mean about severe rectal disease endometriosis on rectum or another disease ?

Did you get pregnant with the cysts or you needed to treat them before getting pregnant 🤔

[Lottie80 in reply to Bdgjdjd]

So I got pregnant with both the cysts and pelvic side wall endo. It took about 6m. I have severe endometriosis inrectovaginal space...the deep infiltrating type.

I have since had choc cysts removed. And adhesions removed. My tubes are still clear. Trying to get preg again now.

Not having surgery on rectum for now. 8 hrs surgery, may need a colostomy and a good month of recovery.

Im now not far off 40 x

[Lottie80 in reply to Lottie80]

Getting pregnant is obvs affected by endo but also your age/weight/ smoking/ drugs/ pelvic infections/partners sperm quality/ the list goes on.

So easy to focus on endo but part of a bigger picture. Good luck!xxxx

[Fati8451]

I have stage 4 endo, recently had complex surgery to excise deep infiltrated endo - uterus and ovaries were stuck to pelvic wall, lots of endo in my pouch of douglas, huge chocolate cyst in my left ovary, plenty of adhesions. Had HSG last month and miraculously my right tube is clear! Really hoping I can conceive naturally and not have to go through IVF.

[Bdgjdjd in reply to Fati8451]

Hope you can get pregnant soon 😭❤️❤️

How long you have been ttc ?

[Staples7]

Hi, yes had excision surgery 4 months ago, tubes are open but they found and removed endometriosis lesions on my bladder, bowel, intestine, & urethra tube.